Anxiety as a special needs parent feels like…..

Anxiety as a special needs parent feels like…..

Anxiety as a special needs parent of Childhood Apraxia of Speech feels like…… It’s my fault. Endless intrusive thoughts wondering what caused it, and despite coming up empty, still feeling like somehow it must have been something you did. I’m not doing enough. Despite working tirelessly and endlessly for your child, you will continue to see her struggle, and it feels like you have missed something; and the enormity of

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Hello dyspraxia…thanks for making me cry

Hello dyspraxia…thanks for making me cry

I’ve been riding a pretty nice high in the post apraxia diagnosis era.  Mostly positive and determined, I had taken action and Ashlynn’s speech improved significantly.  That is such a celebration, truly.  Everyone comments within the family, at work, or at school how her language is exploding and she’s talking so much more! Yes! But then…..her dyspraxia started becoming more noticeable and our focus shifted.  Dyspraxia affects her ADL’s (Activities

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An open letter to millennial cynicism, indifference or neither?

An open letter to millennial cynicism, indifference or neither?

Non-profit. What does that word mean to you exactly?  No really, I have over 300 email subscribers, 1300 fb subscribers,  and….this can’t be right…but according to my statistics I see 10,000 visitors per month.  That’s crazy considering I get maybe 40 likes on a good day on my fb page and a couple comments per month on the blog.  I know SOMEONE is reading this blog though,  so sincerely, I

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An open letter to siblings.  Always be there for each other.

An open letter to siblings. Always be there for each other.

Jace, not only have you had an EXCELLENT and continued start to the school year, I am so proud of you for your behavior at this year’s apraxia walk.  I know it’s not easy to see Ashlynn get a medal for apraxia, and you don’t understand why.  Not yet anyway.  Either way though, you stick by her side, held the sign during the walk, and supported her the best way

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What does one say when giving a speech at an apraxia walk?

What does one say when giving a speech at an apraxia walk?

Being a walk coordinator, you have one job that is a must.  You must give the speech and hand out the medals.  I mean, I guess you don’t have to, but typically this responsibility falls on you.  I like to write, and I also took speech and debate all through school, so these two things don’t make me nervous.  Someone asked me if I cry when giving the speech, and

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