Our apraxia story

Our apraxia story

The start of the journey

My name is Laura Baskall Smith, and I was an SLP five years prior to the birth of my first child and seven years prior to our apraxia story.  I went four days over her due date, and had to be induced.  Labor did not progress as expected and we ended up having a C-section.  Her apgar score was a healthy 9, and I was relieved everything would be okay.

At 6 months, she was a happy baby, always giggling and laughing; however, she wasn’t babbling like she was supposed to.  In addition, she had extremely pointed toes and she was starting to lag in physical developmental milestones.  At her well baby check, the doctor told me to stretch out her calves which I did each night in the bathtub.  I took her to a Physical Therapist who I worked with, who didn’t think she was too far behind yet as she was just meeting her milestones on the low end of the average range.

At one year of age, she had her first word “hi” that she would proudly and consistently say to everyone.  Always the social child, it was a powerful word.

She still wasn’t walking though and could only army crawl.  She also couldn’t eat solids well and would seem to just swallow her food whole.  She couldn’t pucker for a kiss, use a straw, or feed herself well.  She always came in though right underneath the cut off for motor issues.

Taking action

By 18 months I knew her speech was delayed.  I worked with her every night for over a year trying to stimulate language and speech production.  I remember talking to the pediatrician who was trying to give me professional courtesy while still strongly hinting I might want to take her for an evaluation.  I was mortified.  I AM an expert in speech and language disorders.  I help other kids talk all the time.  Surely I could do and was doing what any other SLP would do.

By 2 years 9 months, I finally had to waive my white flag.  Ashlynn was severely delayed at this point in her speech.  That evaluation flipped our world upside down.  “Laura, this is apraxia.”  Never wil forget that day or that sentence.  I will never forget how devastated I was.  I knew from treating it in elementary school what a complex and difficult disorder it was.  A future of struggles and heartbreak flashed before my eyes.  Oh, and not only did she have verbal apraxia, but she was delayed in all motoric development.  Essentially, she was globally impacted with motor planning issues.  In the apraxia world, we refer to this as global apraxia. Our apraxia story though is not one of despair but one of hope and triumph!

I instantly jumped into action.  I found an SLP who specialized in the Kaufman method. She helped Ashlynn over that initial hump from an ineffective imitator to an effective imitator.  I researched like mad. Attended workshops and conferences.    I started only seeing clients with CAS exclusively and have now been specializing in CAS for over 10 years!

I always say a mother is the expert on her child, and she is.  However, now I had the benefit of being an expert on my child and the speech and language expert watching her develop.  I feel like watching my daughter on this journey has taught me so much more than anything ever could.  I know this disorder personally and professionally.  There is nothing now that I am more passionate about.

This blog is a personal and professional compilation of my experiences with apraxia.  I frequently write about my daughter’s journey, about my journey; but also about my clients and their families.  In addition, I post materials I have made that I personally use in therapy for my kiddos as well as informational articles and research reviews.

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6 Comments

  1. Thanks for sharing your story, and give us hope!!!!

  2. I have a similar story, my daughter is now 18, still dealing with it, her speech is impaired. I’ve been amazed of how well she has compensated over the years. She is very bright (reading level on college level) but has a very hard time verbalizing her thoughts. Which affects her socially. Email me if you want to compare notes, I’ve never met anyone like my daughter before, the doctor’s a John Hopkins call her an enigma. There was a person who does research for Hopkin’s with an interest in apraxia. He felt that apraxia explained a lot of her peculiarities but wasn’t very helpful on a prognosis or what to do (I wanted him to see my daughter on a regular basis, but, he only does research)

  3. Hi Diane,
    I absolutely will email you. Thanks for your comment.

  4. Hi Laura..I am from.india and a pediatrician..my son was diagnosed mild autism.with severe speech delay but I always had the gut feeling he knew and understood more than he could show / express…completely non verbal till 7 yrs and no one could make out that it’s apraxia…like u I searched on net like crazy and could get to apraxia..then oromotor apraxia nad finally global dyspraxia…I hope we can be in touch and can we consultation you while in US trip

  5. HI Dr. Deepthi,
    I would be more than happy to talk/consult with you! Feel free to contact me. My email is lauraslpmommy@gmail.com

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