Tag: Ashlynn update

  • Ashlynn update 3.10 years

    Ashlynn is in a regular preschool this year with about 15 other kids.  Most are typical with about six on IEP’s.  I asked the SLP if she was talking at all in the classroom, and she looked at me like I was crazy and then answered “yes?”  I presumed it meant she was surprised that I didn’t think Ashlynn was!  In the Spring, Ashlynn was still gesturing and pointing in the the classroom to express her wants/needs, even though she was speaking at home in 2-4 word phrases; so this is major progress!

    Ashlynn for all intents and purposes can be considered verbal at this point.  She no longer gestures to comment or request; rather, she relies on her speech to communicate.  Her sentences are approximately 2-4 word in length, usually including a subject and verb.  Since she started school, I’m getting a lot more of, “momma wook(look)!!” or “momma! watch!”

    Her Grandma and Grandpa both had surgery recently, and a cute thing she said was,

    “Dama (Grandma) ha (have) an owie, Papa ha an owie…..daddy ha an owie too?”  Haha  She says a lot of stuff now that makes me laugh.  I remember waiting for the day I would hear her say cute things, and actually being sad thinking we were missing out on all the funny things kids say as they are learning language….but we are experiencing it…just a little later than some.

     

  • Ashlynn play boats with daddy.

    Ashlynn play boats with daddy.

    This past Fourth of July weekend we went on our annual trip to Glendo State Park in Wyoming. My husband and I have been going since before we had kids. Without getting into all the details, once you go to Glendo for the Fourth, you always go back if you can! Last year we couldn’t go because I was having my son so we were very excited.

    When we went to the beach, Ashlynn saw my husband pull up on the jetski. She looked at her grandpa and me and announced, “Ashlynn play boats with Daddy?” I teared up immediately. I know I sound like such a sap, but when you are the parent of someone with apraxia and they say things and put novel words together in context, it is just the best feeling! I asked her if she wanted to ride the jetski with daddy, to which she enthusiastically replied “yes.” I of course then scripted the appropriate  way to ask the question and had her repeat, I want to ride the jetski with daddy.

    We still have a ways to go. We’ve been working on her using the first person “I” since before school was out. It’s just such a testament to how much repetition a child with apraxia needs, because I correct her and make her repeat her phrases and sentences using “I” every time she refers to herself as Ashlynn. We were so intent on getting her to learn her name that now it’s hard to get her to use something else.  However, I do know that she will get that too, and that’s a comforting feeling.

    Two years ago we took her to Glendo when she was 21 months old. At that time she had just learned to start walking really well and she only had a handful of word approximations. Unfortunately, anything that wasn’t a flat surface was difficult to walk on, so we still had to help her walk everywhere. She only had a handful of word approximations, and her favorite thing to say was “a dah.” and “hi.”  I’ve learned from my parent support group that most kids with apraxia have a go to sound that they use for everything, and “a dah” was Ashlynn’s.

    Fast forward though two years (and a lot of therapy and extracurricular activities to work on motor skills) and she was running on the beach and bending down on the sand. She is still unsteady in the waves and can’t be trusted around the fire pit for fear she will lose her balance and fall, but that will be a progress report for another time. For now, we celebrate that in two short years, a dah was replaced with a complex sentence asking to play boats with daddy, and now she fearlessly got up on the jetski.

    I look forward to coming years when she will be navigating around the campsite without fear of falling, swimming in the water, and maybe waterskiing or jetskiing on her own.  Also, I excitedly anticipate her talking our ear off around the campfire.

     

  • ABC Song and “Happy Birthday Jace”

    Two HUGE developments with Ashlynn popped out over the weekend! We celebrated my youngest’s 1st Birthday on Sunday. Six months ago, my daughter had to really focus on including all the sounds in syllables, so when it was my husband’s birthday, she could day “Happy Day” with cueing. Well, after the celebration ended and everyone had gone home, she went over to her brother and clear as day said “Happy Birthday Jace. ” There are substitutions so it was more like, “Happy buhday Dace” but my husband and I understood it perfectly. In fact, after she said it we both kind of looked at each other as if to see if we both had heard it. Then we teared up realizing we both DID hear it and it was perfect and beautiful! We asked her to say it again, and she did it again! It was just an awesome moment.

    Then, the next day she sang her ABC song independently without a model for me. More than a year ago, when she was 2 and a 1/2 and I was very pregnant with my son, I sang this song to her multiple times a day. She also heard it on a variety of apps on my iPad she played daily. I remember feeling so sad when people asked me if she was singing it yet, and a Facebook friend had posted their younger than Ashynn daughter singing it that summer. Ashlynn would smile, but never tried.
    But, to hear her sing it yesterday, and to see her smile with pride was better than hearing it last summer.  She also let me video tape it, so her first ABC song I have on video!

  • “Ashlynn Happy….. Papa’s House”

    “Ashlynn Happy….. Papa’s House”

     It’s no secret that my dad is the pushover.  Don’t get me wrong, he could lay down the law when he had to; but when it came to playing my dad is the person to sweet talk.  Ever since Ashlynn was a little baby, my dad would play ball with her.  It started out almost as a game of fetch, but each time she gets better and better. 

    After Jace was born when she was 2 1/2 and still wasn’t really talking, he came over to see the kids.  He hadn’t seen Ashlynn in a while.  He no sooner walked in the door and she went running for a ball.  That day he went home and told my mom that he didn’t think Ashlynn remembered him.  I was incredulous!  Was he kidding?  Ashlynn NEVER just went and grabbed a ball whenever someone walked in the house!!  She knew exactly who he was. 

    Fast forward almost a year later.  My husband and I were going to drop the kids off at Grandma and Grandpa’s so we could celebrate our 8th wedding anniversary.  The whole ride there she was talking about “papa’s house.”  When we rounded the corner of their street she announced, “Ashlynn happy.  Ashlynn papa’s house.  Ashlynn play ball….papa’s house.” 

    Ashlynn has told me she was happy before when I asked her if she was happy, or we were reading a book about characters who were happy.  I’ve never heard her say out of the blue, and perfectly in context that she was happy….and THEN tell me why she was happy.

    It made me tear up, maybe for multiple reasons.  The first and most obvious being that she had communicated to me that she was happy in context without prompting.  The second being that I related to her like no one else could.  Growing up we didn’t have a lot of money, but I did have a dad who cared about me and who liked to play ball, and I was the richest girl in the world for that.  I always knew if I begged long enough (which never was very long), he would give in and go play.  I remember how happy I was to play catch with him, and especially to practice basketball with him when I got older.  I’m so happy my daughter gets to experience that too.
    So today, despite having a great anniversary with my incredible husband, the sweetest words spoken were

    “Ashlynn happy…play ball……papa’s house.”

  • Switching private SLP’s

    There is no easy way to “break-up” with an SLP, but  I made the decision to discontinue private services through the SLP that was seeing Ashlynn.  A lot of parents wonder what is the best way, and I don’t think there is a right or wrong way.  I personally just wrote an email and said I was switching her to my mentor.

    I am very appreciative of all that she did; however, I feel like we had hit a wall with her therapy style.  Her style was to have my 3 1/2 year old daughter sit in a chair across from her for the entire 30 minutes.  The first 15 minutes she would do Kaufman cards, and the last 15 minutes she would play with a fun toy and have my daughter request and comment on it.  However, it was very controlled and my daughter couldn’t hold the toy or play with at all.  It had to be done all her way.  If Ashlynn threw a temper tantrum, she would look at me and tell me that when she has kids they are going to hate her because she won’t put up with that.

    Ya, well, good luck lady.  Kids throw them whether you “put up with them” or not.  It’s called being a toddler.

    After a couple months of this, my daughter was pretty over it.  The first 15 minutes turned into more like 20-25 just trying to get her to say the cards.  Apraxia therapy can be boring, but my goodness, I needed her to get creative!  I did bring up that maybe we could put it in a more naturalistic setting, having them play etc.  In her defense, she did try; but she still had Ashlynn sitting in a chair.  If she didn’t get something accomplished, she just told me to do it at home.  I remember thinking to myself that Ashlynn is one of the most compliant toddlers I have seen.  I wondered how “typical” toddlers who need to MOVE do in therapy with her?

    I tried to be polite, but I informed her that as a school based SLP, I don’t have the luxury of having my carryover plan include parents doing homework.  I have to get creative!  Kids need to be having fun, and besides, that’s how they learn the best!

    I had a great mentor whose therapy plans usually included 3-4 different activities in one thirty minute session. They were multi-sensory in nature, which are methods that involve using any sensory and motor input available to enhance verbal skills.  This usually involves some type of play activity that might have them throwing a bean bag, walking like a crab, or even using felt and velcro boards just to do something different with those same old picture cards.

    David Hammer, a well known CAS expert out of Pittsburgh does this as well.  I’ve been to a couple of his presentations now and he shows a lot of video.  I rarely see a child required to sit in a chair across from him. He has them doing puppet shows, hitting the cards with a nerf gun after they say their sound, or tossing bean bags in and out of a huge dinosaur’s mouth aiming at the artic cards.  He has them banging on drums to represent each sound or syllable etc.  This is the way to promote carryover, and I could see this SLP wasn’t going to do that.  She may have known the Kaufman method, but her therapy style wasn’t what I was looking for.

    That’s the thing.  There are always going to be reading programs, math programs, and speech programs out there, but teaching style or therapy style plays a big if not bigger part in facilitating change.

    When I was an SLPA (assistant SLP), I worked under a lot of supervisors and was able to see a lot of different styles.  All therapists are qualified and trained professionals that will most likely get the job done, it’s just some got the job done a lot faster.  That’s the kind of SLP I strive to be, and that’s who my mentor is.

    Since it’s summer and my mentor is off, I”m switching Ashlynn to her.  I know Ashlynn would have progressed, but I need her to progress faster, which means I need someone more multi-sensory. This is where I have seen my mentor shine and I’m excited for Ashlynn to start with her.

     

  • Jumping on her bed?  Break every spring girl!

    Jumping on her bed? Break every spring girl!

    At the beginning of her preschool school year after she had just turned three, I went to observe her classroom.  I went for a lot of reasons, mostly to make sure I liked the classroom and to make sure her needs were going to be met.
    I left the observation in tears.  Not because I was disappointed in the classroom.  Not because I was disappointed in the teacher or the therapists.  No, I left crying with a broken heart.  You see there was an obstacle course in class that included Ashlynn jumping on a trampoline with a bar, and then crawling like a bear around a table.  She couldn’t do any of it. I watched all the other kids jump enthusiastically and then do their best bear crawl.  When it was Ashlynn’s turn, she needed help to get up on the tramp.  Then, instead of jumping, she just marched her little legs up and down.  Big smile and beautiful energy, but no jumping.  Not even close to jumping really.  She needed help getting down and in fact she almost fell.  Then, as she went to do her bear crawl, the teacher had to hold her core for her to even get up on her legs.
    It makes me tear up even now.  It just wasn’t fair.  Why couldn’t she jump like the other kids?
    Well, today, just 6 short months later, we went to her preschool picnic to celebrate the last day of school.  There was that trampoline that just a half a year earlier she could only march on.  Well, she stood in line with that same big smile, that same beautiful energy; and when it was her turn she got up on that tramp WITHOUT anyone’s help, and she jumped, and she jumped, and she jumped some more.  And….when it was time to get off, she got down without anyone’s help.
    As I sat on the side watching, I realized that I’m the one that has it all wrong.  The only thing that changed was that my daughter could now jump, but that wasn’t the real story.  The real story was that despite being different or not, or needing help or not, or being able to even do it or not, she always DID it.  She did it with a smile, a giggle, and that beautiful aura she carries around with her teaching me life is what you make it; and when it’s what you make it, you WILL MAKE IT.
    She amazes me everyday.  I still hate that she has it.  I still hate that it seems like she has to scratch and crawl for every achievement she makes, but I’m beginning to realize she WILL always do anything she sets her heart to doing and I am so proud of her.
    Oh, and one more thing.  As she went down for her nap today I heard noise coming from her room.  When I went to check on her, she was holding her bed rail jumping up and down like she was on that trampoline.  I told her to lay down like any sensible mother would, but inside I was thinking, “Keep jumping Ashlynn!  Break every spring!”