Day 21 of Apraxia Awareness Month is to discuss your biggest challenge. I read the various posts and related to all of them. ALL of them. Unfortunately when your daughter has a laundry list of disabilities with apraxia being just one of them, yes, I could relate to everything. “My son struggles with word finding.” Check “My son struggles with anxiety.” Check “My daughter struggles with attention.” Check “My child
Most parents of kids who have a child with global apraxia will at some point visit the neurologist. It’s usually before the age of 7, which is the age Ashlynn is today. I remember the referral, although the dates are a little fuzzy. We were either at Ashlynn’s 6 or 9 month checkup and I had to fill out one of those dreaded developmental screens. Don’t get me wrong, as
Global Apraxia is a hell of a disorder. I’ve written before that though at times it has been a blessing, I don’t believe I will ever quite forgive it. Despite a child having the will, they have to work, and work, and work to find the way. Though they have things they want to say, they can’t always say it. Though they have things they want to do, they can’t
Thanks to funding from Small Steps, I have Ashlynn back in therapy with her private SLP, who is also my mentor and now friend. The other night she was updating me on her progress and what happened in the session. I take my daughter to her house, so occasionally her husband or dogs may walk by and apparently distract Ashlynn. She was remarking on Ashlynn’s ability to hold a pretty
Exactly 18 months ago, I wrote one of my favorite and initially most popular posts: Lessons from a Tricycle. At that time, Ashlynn was close to 4 and still could not pedal a tricycle. I describe how we bought it a couple months before her third birthday when I was pregnant with my son. A year later, I wrote that post and explained that she STILL wasn’t able to
I can’t remember a time since I learned to write that I stopped writing. I was the girl with diaries, journals, writing pads, and notebooks filled with writing. Obviously now, I continue to write. There was a time though my writing was noticeably absent. I recently scoured my notebooks and old blogs searching for what I wrote around the time of Ashlynn’s diagnosis and came up empty. I had many