SLP Mommy of Apraxia

Tag: special needs parent

  • Summer speech with a little sidewalk chalk

    Summer speech with a little sidewalk chalk

    Looking for a fun way to incorporate some speech practice into your summer schedule?  All you need is some sidewalk chalk and your kid!

    I picked some sound combos Ashlynn is currently working on in speech and drew them in the boxes of a hopscotch grid.  We then would throw a rock and whatever the rock landed on, we would hop to that picture and say the picture.  She was so busy having fun, she didn’t really realize I was working on her /l/, /l/ blends, and /s/ blends!   Not sure if you can see here, but we have a firefly, spider, butterfly, ladybug, dragonfly, bumblebee, roly poly, star, and clouds in the sky.  

    As a bonus, since Ashlynn has global apraxia, the added jumping and keeping feet in the boxes would make any PT or OT happy too!

    Look at those good jumps!  My heart smiles at this picture because jumping did not come easy.  If you’re interested, you can read about here: Jumping on the bed

    Not to be outdone, her 24 month old brother was hopping right along too and practicing speech! Fun for everyone, and momma stays sane with kids entertained!

  • The day I realized apraxia has been a blessing.

    The day I realized apraxia has been a blessing.

    Yes, you read the title correct.  I just called apraxia a blessing.  It took me a long time to get to this point.  I certainly didn’t feel it was a blessing here 2.5 years, or here, New worries, or here IEP on the other side of the table, or here Background and suspicions.  I remember shouting “I HATE APRAXIA” “APRAXIA SUCKS!!” everytime I watched my daughter struggle.  Slowly but surely though, the blessings started to outweigh the diagnosis; in fact, blessings started to develop out of the diagnosis.

    I was talking to a mom the other day from Georgia at Mommy Square, and she told me she has met a lot of friends because of apraxia.  It got me thinking that I have too.  I have a mom from Syracuse with whom I formed a connection because of our commonality of being mom’s who were ALSO SLP’s.  We shared our frustration at the lack of knowledge surrounding apraxia, and our mission to be educated on it.  I have a mom from Utah who has a daughter the same age as mine with apraxia.  We blog, collaborate, and fight apraxia together.  I met Sharon Gretz,  the founder of CASANA, the non-profit behind the apraxia-kids website.  Meeting her was a pivotal, inspirational moment in my life.

    All these moms have one thing in common.  They all are incredible, inspirational women, and they all go through extraordinary lengths in the names of their child.

    I am blessed to have found and to know each of them.  I am blessed to understand from an emphatic position what it is like to have a child with apraixa.

    I am blessed that I was chosen to be her mommy, because through her I have learned the true meaning of perseverance and bravery by seeing them through the eyes of my daughter.

    I am blessed because we have so many people in her corner.  Grandma’s, Grandpa’s, Uncles, Aunts, & cousins all cheering her on.

    I am blessed because out of the struggle has come joys I could never have dreamed of or experienced myself.

    I am blessed because though her dx could have brought distance between my husband and I, it only brought us closer toward the common goal of beating it.

    I am blessed because my husband confided one day that when he starts to feel bad about the hand Ashlynn was dealt, he always sees her overcome it.

    I am blessed because if not for her, I wouldn’t have set a goal to specialize in apraxia, and in turn, I may not have met all the wonderful people I have met, or been able to treat all the wonderful children I am priveleged to treat.

    I am blessed because I never take for granted one word, one sentence, or one song.

    I am blessed because I know other parents who feel the same.

    I am blessed because apraxia has taught me gratitude.

    I am blessed from simply being her mother.