Tag: motor planning

  • Success WAS there, and we will revel in it.

    Exactly 18 months ago, I wrote one of my favorite and initially most popular posts: Lessons from a Tricycle.  

    At that time, Ashlynn was close to 4 and still could not pedal a tricycle.  I describe how we bought it a couple months before her third birthday when I was pregnant with my son.  A year later, I wrote that post and explained that she STILL wasn’t able to ride it.  When one has motor planning difficulties, the steps involved in riding a tricycle become glaring.

    Core strength
    Bilateral coordination
    Vestibular and propriocepive systems
    Balance
    Strength
    Endurance

    Who knew one needs ALL of the above to do a simple childhood rite of passage like ride a tricycle.  In that blogpost, I described “arched back and frazzled patience.”  My back hurt every time I tried to teach her how to ride.  I would lean over and pull or push her, while she struggled just to keep her feet on straight.  I wondered time and time again, will she ever actually get this down?  Do you have any idea how heartbreaking it was to have her “walk” her trike back home??  I knew deep inside though she would get it one day.  I wrote,

    “Success will surely be there, waiting more patiently than me.”

    After having my son, I realize how easy people have it.  I didn’t teach my son anything.  I gave him his big wheel and said “have fun.”  I didn’t have to teach him how to keep his feet on the pedals.  He just did it.  I didn’t have to remind him that while he was pedaling he had to look up and pay attention because he was going to fall off the curb.  He just did it, and I’m so proud of him.  He loves flying down the street on his big wheel shouting “faster!  FASTER!!”

    I remember my husband posting enthusiastically when Ashlynn had actually purposefully and independently pushed the pedal forward herself and propelled herself for at least two rotations.  We were so sure she had arrived.  That was it right?  She got it down, right?

    No, no it wasn’t.  The motor plan wasn’t quite carved out enough in her brain.  At least, that’s how I imagine it.  I imagine pathways in her brain as a ski slope full of thick powder.  Every motor activity requires her to carve a path herself to the bottom.  It’s hard.  It’s tiring, and when she gets back up the hill to try again, she may swerve off track and be forced to try again.

    Once the motor plan is mapped though?  Oh boy.  Then it’s like the groomed hill, wide and easier to maneuver.  I dare say we are beginning to revel in the groomed slopes.3b5621f62a9782ca81aaa1185f4ca8a8

    She rode her trike around the block tonight.  As I watched her in front of me, the sun was setting, and there she was….laughing, smiling, turning the handlebars when she was in danger of veering off the curb, and going as fast as she could and then stretching her legs out in front of her to feel the wind on her face.  This to me is childhood.. This to me is what apraxia had robbed from her for so long.  As I watched her, hair blowing carefree in the wind, the setting sun once again caught my gaze….and I realized, the sun was setting on a chapter in her life.   There it was….success…just as I predicted, waiting more patiently and more beautifully than I ever could have imagined.

     

    Here’s the video if you’re interested.  Warning: She’s so far ahead, she’s hard to see 🙂

     

  • It’s hard to explain how global apraxia affects so much

    It’s hard to explain how global apraxia affects so much

    We went on a Santa Train again this year at Georgetown Loop Railroad.  Ashlynn has never talked to Santa before.  When she was 3, she cried and clung to her dad for dear life.  When she was 4, we went on a different Santa Train, and though she wasn’t scared, she was too reserved to say anything audible enough for him to hear.

    This year a four year old girl was sitting across from us.  As her parents were asking her what she was going to ask Santa for, she eagerly said she wanted another Elsa doll.

    Ashlynn’s not really into Frozen, or any movie really.  Though each year we try, she just has no desire to sit and watch TV…much less a movie.  As for toys, we took her around a toy store three times leading up for her birthday, and though she was mildly interested, it’s just not like the “kid in a toy store” image that might usually come to mind.

    Fortunately, I have my friend Kim, an SLP who also has a son with global apraxia.  I also have a 7 year old client with it too, and interestingly enough, they all are similar in these areas.  They don’t have an overt interest in movies, TV, or toys.  Why?  I really don’t know.  The toys I think has to do with their struggle to play with toys they would cognitively be interested in, but can’t mainuplate because of the gross and fine motor apraxia.  That happened to her last year when she actually asked for baby clothes but then couldn’t put them on or take them off the baby.   To engage in imaginative play is equally as challenging due to their delayed speech and language skills.  Who knows.

    All I know I I started to feel sad listening to this four year old chatter away about what she wanted….until it was Ashlynn’s turn to sit with Santa.  Though he kept asking her what she wanted, what she wanted was to talk.  She asked him “What’s this?” and “What are you doing?” until he smiled and then moved onto another kid.  As he was walking away, she grabbed me frantically and said, “I need presents!!”

    Smile

    Oh Ashlynn.  That’s my Ashlynn and she’s perfect and in that moment I had nothing to be sad about. All she wanted, all she’s ever wanted is to engage people in conversation, and then as an afterthought she thinks about herself.  Even then though, she had nothing specific.  Just presents.  From the outside I’m sure she looks like a typical 5 year old, and it’s hard to explain just how involved her needs are, or how they affect so much.

    However, today, she asked for presents from Santa Clause just like a typical 5 year old and she will find them waiting for her on Christmas morning.

    from the outside in

  • Summer speech with a little sidewalk chalk

    Summer speech with a little sidewalk chalk

    Looking for a fun way to incorporate some speech practice into your summer schedule?  All you need is some sidewalk chalk and your kid!

    I picked some sound combos Ashlynn is currently working on in speech and drew them in the boxes of a hopscotch grid.  We then would throw a rock and whatever the rock landed on, we would hop to that picture and say the picture.  She was so busy having fun, she didn’t really realize I was working on her /l/, /l/ blends, and /s/ blends!   Not sure if you can see here, but we have a firefly, spider, butterfly, ladybug, dragonfly, bumblebee, roly poly, star, and clouds in the sky.  

    As a bonus, since Ashlynn has global apraxia, the added jumping and keeping feet in the boxes would make any PT or OT happy too!

    Look at those good jumps!  My heart smiles at this picture because jumping did not come easy.  If you’re interested, you can read about here: Jumping on the bed

    Not to be outdone, her 24 month old brother was hopping right along too and practicing speech! Fun for everyone, and momma stays sane with kids entertained!

  • Happy Birthday Song!  Ashlynn turns four

    Happy Birthday Song! Ashlynn turns four

    Ashlynn turned four this past weekend and my husband and I were just beaming with pride.  Last year, she couldn’t blow out her candles, sing the Happy Birthday Song, much less even say Happy Birthday.

    When she woke up in the morning, balloons were waiting for her in our hallway.  Before she hit the bathroom she excitedly said “BAYOONS!!”

    As she stepped in the kitchen, we had a Minnie Mouse Birthday banner, tablecloth, and big balloon decorating the kitchen.  She could not stop talking!  “Minnie right there, and Minnie right there, and Ashlynn”s Happy Birthday!”  When my husband came out in the kitchen she called “Look daddy!  Minnie! Ashlynn’s Happy Birthday!”  When he asked her how old she was, she proudly held up four fingers and pronounced “fowa.”  She just recently has been generalizing the ‘f’ and she said it correctly without any cues. Also, last year, the motor plan to hold up the right amount of fingers just wasn’t there; but this year, with a little planning, she pulled in her thumb and held up all four fingers.  My husband and I exchanged looks of pride knowing what the other was thinking, without having to speak a word.

    When we got in the car to go the Pumpkin Patch, all by herself we heard a happy little voice coming from the backseat, “Happy Birthday to you, Happy Birthday to you, Happy Birthday to ASH – IN, Happy Birthday to you!”  This time when we exchanged looks, we both had a little tear in our eye.

  • She is the definition of perseverence (a poem)

    She is the definition of perseverence (a poem)

    You went to speak, but the words wouldn’t come,
    Stuck in your brain,  so easy for some.

    You went to crawl with the best of intents,
    Yet your body didn’t know what your brain meant.

    You went to walk, big smiles and all,
    yet every time you tried, it ended with a fall.

    You went to drink from a big girl cup
    You would sputter and spit till it came up.

    A new car for Christmas kids want to ride
    Spins in circles, hard to learn how to drive.

    But

    You are a living example to persevere
    and with it you conquer all our fears.

    One day you said mommy, and I love you
    One day you crawled to daddy’s shoe.

    You don’t just walk but now you run
    You drink from any cup till it’s done.

    and I know in time you will do it all,
    with  more patience and practice
    you will conquer it all.