Tag: Living with CAS

  • Just love

    Just love

    It’s really not ok to develop a severe disliking for a child.  They are, after all, just a child.  However, there is a little girl at Ashlynn’s school who is very hard to like.  She’s rude, rolls her eyes, and bosses Ashlynn around.  She has mocked my son (who’s a baby) when he was talking, refused to say “hello” to Ashlynn even as Ashlynn greets her with a cheerful “hello,” and demanded Ashlynn stop hugging a little boy in her class among other things.  All of this has happened in the first five minutes before school started, so I can’t help what wonder how this girl is to Ashlynn the rest of the day; and my anger stemming from somewhere in the depths of me, begins to rise giving way to some not so nice feelings toward this little girl!

    The other day for the class holiday party, I couldn’t go so it was just my husband and Ashlynn.  Feeling like I was missing out, I text messaged him begging for a picture.  He took the most adorable picture of Ashlynn.  I smiled as I saw it, and then I saw she was sitting next to……that girl.  Why?  “Why is she sitting next to this little girl who has an attitude problem and is ALWAYS rude to her?” I huffed in my mind.

    Well today, as I dropped her off for school, we were once again graced by the little girl’s rudeness.  She refused to say hello, and only spoke to tell Ashlynn to get away from the door, declaring SHE was first.  Ashlynn backed away and the girl with an air of haughtiness gestured, “YOU can get behind me.”

    Okay really??  She’s four!  What the heck!  Ashlynn sweetly nodded her head and answered “yes?”  Of course since she was in fact there first, there wasn’t much I could say, as the rules of preschool are very black and white.  However, the rules of preschool don’t dictate my feelings, which were only growing into more of a cancer now.

    As I left the school, I called my mom asking her how she dealt with these problems?  My kid’s only four and I’m already mad at her “friends” and developing hate for a mere child.  I need to get it together.  My mom had great advice, including “let go and let God.”  She also reminded me that in life we all have to deal with these people at different times, and unfortunately, our kids have to learn that too even though it may hurt us.  She made me feel better, and I thought I had put it to rest.

    I started thinking though. Ashlynn has only love in her heart.  She’s the target, not me; and yet she still tells her hello everyday with a big smile.  She still hugs kids when they want hugs (or maybe even if they don’t), and she still sits with her at a party, possibly because no one else will.  I know it wasn’t because she doesn’t have any friends, because all the teachers assure me frequently how well liked Ashlynn is and how she is friends with everyone.  I realized I needed to take a tip from Ashlynn.  There is no room for hatred in our heart.  Love is not only easier, but it’s kinder and makes us feel better.  This little girl is unhappy, but Ashlynn always has a smile.  She has a smile because she dismisses the eye rolling, the lack of manners or social etiquette, and just wants to love.  If Ashlynn can love so simply, than so can I.

    She’s a real class act that Ashlynn.

  • Don’t dare to compare

    Don’t dare to compare

    Ashlynn was my first child.  In a way, it was fortunate I had nothing to compare her to, and in a way, it was unfortunate I had nothing to compare her to.

    My son Jace is my second child and is currently 16 months.  He not only walks…he RUNS.  He not only babbles and says words, he puts two and three words together!!  Every time he hits a milestone, my heart bursts with pride; and every time he hits a milestone a tinge of sadness seeps in when I think of just how long it took Ashlynn to do anything he does. 

    I hate that.  I hate comparing.  I wish that when someone told me how they know they heard Jace say “what’s over there” in his baby jargon that they could understand, I could smile longer than a fleeting moment until I wondered when Ashlynn finally put those three words together.  I wish when someone told me how they swear they heard him singing the ABC’s, I could beam with pride longer than a second before my mind swirled to countless days singing ABC’s with Ashlynn on the iPad, the fridge toy, the vacuum toy, in the car, while reading a book and still not hearing her be able to say “A.”  I wish that when he drank out of a real cup, a straw, a water bottle and looked at me with pride, I could be there only in that moment with him, and not start to think about how Ashlynn still chokes drinking her sippy cup.

    These pictures show Jace age 16 months, and Ashlynn age 18 months.  In her picture you can see her open mouth posture (low tone) and also see the flexion in her feet.  She was just barely walking and walked on her toes.  I stretched out her calves everyday in the bathtub. 

    It makes me think about a quote from Temple Grandin, “There needs to be a lot more emphasis on what a kid can do, instead of what he cannot do.” 

    So let me say, even though Ashlynn didn’t talk, or sing her ABC’s, her sweet smile and bright eyes lit up a room.  Her soft and gentle touch melted hearts, and her giggle was and is still contagious.  She may not have drank from a real cup or a straw, but she would hold out a goldfish to a friend to “share” and she would pat the seat next to her forcing whomever to sit down and enjoy her company. She may not have ran when we went outside, but she would lay down next to me staring at the clouds and sharing a perfect moment in the summer sun.  She may not have told me when she was hurt, but she was the first to look concerned if she thought her dad or I was. 

    Yes, there does need to be a lot more emphasis on what a child CAN do, and from now on, I hope to not compare, but to focus on what each child does well!  I’m so proud of them BOTH and I want to be proud of each of them and revel in those moments.

     
  • Ashlynn Trick or Treat

    Ashlynn Trick or Treat

    Ashlynn turned four this Halloween, and it brought another milestone: being able to say “trick or treat” and be understood!  When she was two, she couldn’t even attempt to say it.  At three, she could say “ee o ee” but then clammed up and wouldn’t say it on command.

    At four though, we had success!  She still needed prompting and encouragement, but she was able to say an intelligible “trick or treat” and this was her best Halloween yet.  You can click on the link at http://www.youtube.com/watch?v=l2BsWccC4Nk to hear it.  Definitely one proud momma here 🙂  Happy Halloween!

    https://youtube.com/watch?v=l2BsWccC4Nk%3Fversion%3D3%26autohide%3D1%26showinfo%3D1%26autoplay%3D1%26autohide%3D1%26attribution_tag%3Dtgo3ZEvB8eCF38nnzTbm0g%26feature%3Dshare