Tag: Apraxia

  • Happy Birthday Song!  Ashlynn turns four

    Happy Birthday Song! Ashlynn turns four

    Ashlynn turned four this past weekend and my husband and I were just beaming with pride.  Last year, she couldn’t blow out her candles, sing the Happy Birthday Song, much less even say Happy Birthday.

    When she woke up in the morning, balloons were waiting for her in our hallway.  Before she hit the bathroom she excitedly said “BAYOONS!!”

    As she stepped in the kitchen, we had a Minnie Mouse Birthday banner, tablecloth, and big balloon decorating the kitchen.  She could not stop talking!  “Minnie right there, and Minnie right there, and Ashlynn”s Happy Birthday!”  When my husband came out in the kitchen she called “Look daddy!  Minnie! Ashlynn’s Happy Birthday!”  When he asked her how old she was, she proudly held up four fingers and pronounced “fowa.”  She just recently has been generalizing the ‘f’ and she said it correctly without any cues. Also, last year, the motor plan to hold up the right amount of fingers just wasn’t there; but this year, with a little planning, she pulled in her thumb and held up all four fingers.  My husband and I exchanged looks of pride knowing what the other was thinking, without having to speak a word.

    When we got in the car to go the Pumpkin Patch, all by herself we heard a happy little voice coming from the backseat, “Happy Birthday to you, Happy Birthday to you, Happy Birthday to ASH – IN, Happy Birthday to you!”  This time when we exchanged looks, we both had a little tear in our eye.

  • Superhero Brave

    Superhero Brave

    For those of you familiar with my blog, I’ve spoke of “Ben” before. A little boy on my school caseload from a Spanish speaking family who has CAS and is nonverbal. However, IQ testing shows him in the 75th percentile! He’s sooo smart. I met him last year in Kindergarten, and we formed an instant bond.

    His Kindergarten teacher was frustrated that he wouldn’t talk; and I’m not sure if she felt it was a reflection on her, but she really wasn’t that supportive of him.
    This year is different! He has a new teacher and she sees what I see, what I saw. She’s sees a smart, friendly, lovable little boy who wants to talk, but just needs people to believe in him and boost his confidence. Every time I see her she starts a sentence with, “you won’t believe this” or “I LOVE him.” Yesterday she told me she believes this year is going to be HIS year. Starting from the first day when she was going around having kids do introductions, she frowned upon getting to Ben and having the other children speak up and say, “Oh he doesn’t talk.” She immediately stuck up for him, telling the other children yes he did talk and that people talk in different ways. Some use Spanish, some English, some use their hands, some use gestures, and some use devices.
    Ben’s corners of his mouth got just a little bit wider.
    Another day, one of the kids noticed that Ben appeared to be talking to the class frog and remarked, “Look! I think Ben is talking!”
    Her reply?
    “Of course he’s talking! Didn’t I tell you Ben talks?”
    Ben’s chest puffed out just a little bit further.
    And then there was today. The icing on the cake.  I picked him up and she calls me over to brag about an assignment he finished first and attempted to share with the class. Picking up on her hint, I praised him loudly in front of the other children. As we leave the too, a little classmate returning from the bathroom enthusiastically called, “Bye Ben!” Now Ben knows how to say bye with perfect clarity. In fact, he says it to me everyday. He pressed his lips together, but the anxiety was too much and the boy left before Ben uttered a sound. I decided to scratch the lesson plan for that day, and instead I asked him if he knew what brave meant.
    I had him draw a picture of someone he thought was brave and I told him I would do the same. We sat at different tables, and I told him not to peek.
    When he was finished, he drew a picture of Hulk and Captain America. I asked him why they were brave and with a smile he pantomined strength and then pantomined a sword motion. I verified he thought they were brave because they were strong and had swords to which he eagerly nodded his affirmation. I then wrote on the back that Hulk and Captain America are brave because they are strong, have swords, and I added they fight bad guys. He tapped my arm and held up three fingers. I said, “three bad guys?” to which he nodded apparently satisfied.
    He then pointed to my picture. I asked him if he wanted to see mine and he again nodded yes. As he looked at a picture of a little boy with a blue school uniform, he looked at me puzzled. I asked him, “Don’t you know who this is?” Ironically, I had also just happened to also draw him holding a sword fighting a word bubble in his head! What luck!
    “It’s you Ben.”
    His eyes lit up and he pointed to himself incredulously.
    “Yes” I said. “You are my superhero because even though talking is so scary, you still try, and that’s what makes you brave.”
    Now that smile was a full blown grin.
    I went onto tell him I needed him to be even more brave than he already was though. I needed him to be superhero brave when it’s time to talk. We then stapled the pages and walked back to class.

    At the end of the day, the Facebook support group had convinced me to tell his parents about the lesson; and since they only spoke Spanish, I decided to go out with the teacher at dismissal and have her translate. When I walked in the classroom, all the kids were sitting on the carpet with their backpacks on their backs in preparation to go home.  In the middle was Ben, with his backpack on, but our book in his lap. It did mean something to him!  As luck would have it, BOTH parents came to pick him up that day.  As the teacher translated, his mother choked up and gave him a big hug as they left to go home.

    Now his chest was puffed out just about as far as it go!  That’s what superhero brave is all about!

     

  • Ashlynn update 3:10

    Ashlynn said her first compound sentence yesterday. It took me so much by surprise that I almost ruined it by interrupting her.

    I picked her up from school asking the usual questions and getting the usual answers,
         “How was school?”
         “Good.” (Dood)

         “What did you do?”
         “Play” (pay)

         “Who did you play with?”
         “PLAY!!” she says impatiently.

         “I know, but WHO did you play with?” I asked.
         “Evelyn (Eveyin)

    As I was about to interrupt she said,
    “She’s nice and she’s funny (sunny) too.”

    A six word compound sentence!!! Music to my ears!

  • “You say it best, when you say nothing at all.”

    “You say it best, when you say nothing at all.”

    Today I took Ashlynn to one of my BFF’s bridal shower.  There weren’t going to be any other kids there, but Ashlynn is so good around a group.  When I think of people who have charisma, I think of great speakers and people gifted with words.  The Martin Luther King’s and the John F Kennedy’s of the world.  But Ashlynn makes me realize charismatic people don’t need to speak.  There is so much else to them.  Their presence, their unseen light that people can feel and gravitate toward, their inner goodness that shines brighter than words can resonate.  The latter I believe, fits my daughter.

    She is talking now in 3-4 word phrases, but in a group she gets shy and I have to prompt her to even utter one word responses.  Somehow though, she manages to light up the room.  Flitting by from person to person, looking at them with her curious, kind eyes; touching them with her baby soft hand.  Yes I’m in a room full of women, but even so, strangers reach out to touch her hair, take joy in her smiles, feel happy in her presence.  They hold her hands, give her hugs, and let her sit on their laps.   I know I’m her mom, but I’m telling you, I can see it and not just because I’m her mom.

    She is so special to me, and even though she’s not this outwardly verbal person, she somehow demands attention in the room.  Eyes are drawn to her, smiles are cast upon her, and mutual love is relayed from each other.  All this, without her hardly speaking a word.

    There’s a country song by Allison Krause entitled, “You say it best, when you say nothing at all.”  Ashlynn truly personifies this.

    Dear Ashlynn,

    “The smile on your face lets me know that you need me, there’s a truth in your eyes saying you’ll never leave me.  The touch of your hand, says you’ll catch me whenever you fall.  You say it best, when you say nothing at all.”

  • Brain plasticity changes in children receiving PROMPT therapy for children with idiopathic apraxia of speech!

    Brain plasticity changes in children receiving PROMPT therapy for children with idiopathic apraxia of speech!

    A research article in Brain Topography: A Journal of Cerebral and Dynamics, has a published a new study that demonstrates actual brain plasticity in the brains of children diagnosed with idiopathic apraxia of speech after undergoing intense PROMPT training.  According to the article, it’s the first study of it’s kind to demonstrate “experience dependent structural plasticity in children receiving therapy for speech sound disorders.

    I’ve been waiting for this kind of functional MRI proof for speech sound disorders.  I’ve seen the brain imaging changes in kids with dyslexia, and I knew the research for speech sound disorders would be just around the corner.  It’s exciting to see scientific proof that therapy works!

    Click on the link below to read the full article.

    Cortical thickness in children receiving intensive therapy for idiopathic apraxia of speech

  • Lessons from a tricycle

    Lessons from a tricycle

    We bought a tricycle for Ashlynn three months before her third birthday. My husband and I took her to Toys R Us, excited, full of hope and expectation. I had seen two-year old children on Facebook gleefully riding their trikes with big goofy smiles on their faces, and I couldn’t WAIT to snap that happy gleeful face on my little girl.
    Pregnant with my son, we all left the store and I had visions in my head of me walking to the park, with her riding her trike in front. I would occasionally have to call for her to stop so she wouldn’t get too far ahead………….
    ….but it was me getting too far ahead that night. One year later, with aching backs and frazzled patience, my Ashlynn still can’t ride a trike.  She has made progress though and can now not only keep her feet on the pedals, but can also keep them “straight” on the pedals where her heel isn’t constantly coming into contact with one of the bars.  As for the actual alternating pushing motion, that is still to come.  
    You’d think she would be frustrated, but the opposite is true.  As kids whiz by on their bikes, she happily laughs, giggles, and asks me, “See bicycle mama?”  and then with determination in her face she gets up on her tricycle again, ready to practice. Like most other motor tasks, this one too will take time.  It will be a journey to success, but success will surely be there; waiting more patiently than me.
    However, I’ve learned success is never really about the outcome, just as riding a bike is never really about the destination.  Every bike rider will tell you the fun and the meaning are found in the journey.  The sights seen, the hills climbed, and even possibly the falls taken.  The lesson learned from the tricycle is more than just learning to ride.  It’s a metaphor for life, and of one thing I”m certain.  Ashlynn will always be a success because she has already learned: the fun is in the journey.