SLP Mommy of Apraxia

Tag: apraxia and fear

  • Good teachers change lives

    Good teachers change lives

    What a busy month!  Life definitely doesn’t slow down just because I’m off for summer break!  I signed both the kids up for swimming lessons.  Ashlynn would be in the Guppy class for probably her 5th time, and Jace and I would be in the parent/tot class.

    I decided that since it was the first day, and considering Ashlynn’s aversion to water now following two traumatic pool events, here: I would stay on the side with Jace and watch to make sure she was ok. I realize now it was totally irrational, but I guess I was expecting she would have her same instructor from last year and she would be off and running.  She sure was excited at the thought of going swimming.  I snapped this photo while we were waiting for them to call off the classes.  Doesn’t she look excited?

    I have to admit, when they called off her instructor, he looked like he was 12.  Okay, not really, but he was young, new, a little hesitant himself.  Ashlynn refused to get in the water.  She cried hysterically as fear gripped her whenever they even mentioned it.  Another little boy in her class had autism, and his mom had to literally sit on the side and hold his arm or he would go swimming off under water, and another little boy had no desire to listen or follow directions.  I actually kinda felt bad for this kid as much as I did for Ashlynn.  He was in waaaaay over his head!

    Week two, Ashlynn would let him take her out to practice skills, but she either had her arms gripping his face, her neck up, or her knees pulled to her chest.  She also refused to stand in the water and would only sit on the side of the pool.  It literally broke my heart.
    There were some cute moments though.  When it was time to stand on the edge of the pool, she would hold the little boy’s hand who had autism and talk to him and repeat the directions.  He never looked at her, but he seemed to listen and his mom seemed more than grateful.  Ashlynn was the only child to talk to him and she was the only person beside his mom that he would let hold his hand. I just thought, “Well that’s Ashlynn.  Maybe she isn’t here to learn to swim.  Maybe she has a bigger purpose.”  Even though I was proud of her, my heart was still sad.  I lamented to my husband that I felt that she was actually worse than when she started swim lessons last year because now she wouldn’t even get in the water.  
    We tossed around private lessons and decided to do it.  I heard the instructor of my parent/tot class saying she and another instructor were the only two current certified staff.  I figured I’d go with her and had her write her number on the back of the card.  That was Thursday.  
    On Monday, Ashlynn started her new two week session.  I just figured she would have the same boy, and I thought, well, maybe it’s best because at least she knows him.  However, I was surprised when they put her in “Josh’s” class.  I had seen Josh since last year.  He normally taught the older kids, or so I thought.  I would marvel about his amazing teaching ability and how his kids would respond to him.  I wished he taught the younger kids, but I had never seen him do so, until today.
    Ashlynn went shyly with me holding her hand.  Instead of my usual speech of “Even though Ashlynn doesn’t look like it, she has special needs and has a motor planning disorder that affects everything from her speech to her gross motor skills, so please keep an eye on her because she has had to be rescued twice” I said, “You teach little kids?  I only thought you taught older kids?”  He seemed surprised and said that was weird because he usually only teaches the little ones.  
    I stepped back with Jace and turned around to see Ashlynn red faced, freaking out not wanting to get in the pool.  He put her in anyway and then bent his head in and said something to her ear.  I have no idea what he said, but she stopped crying.  Before I even knew it, I was in tears on the sideline watching her not only stand in the water but blow her bubbles and do her head bobs.  I sent text messages to my husband.  
    When I looked up again, I saw this:

    Full back float, head down, arms AND legs out relaxed, and trusting Josh.  She has NEVER, EVER, done this with anyone.  I looked on stunned and snapped another picture.  When she started to tense up, he leaned his head into her ear again and told her to trust him.  He told her he had her, and when she did it he gave her the biggest hug.  

    Tears flowed.
    To see the pride on her face, the confidence in her smile, the sparkle in her eyes….he did this in ONE day!! 
    And what I realized was, I actually didn’t care about the swimming.  I mean I do, but I was more proud of her being proud of herself.  He gave her confidence, he instilled a sense of accomplishment in herself and that is what being a teacher is all about.  He made her WANT to learn to swim.  
    Good teachers change lives.
    In this journey in apraxia, I realize and learn over and over and over again, that maybe we have to know the darkness to truly appreciate the light, and the light sure shone on us today.  

  • If we don’t say we’re scared, does it mean we don’t have fears?

    If we don’t say we’re scared, does it mean we don’t have fears?

    Ashlynn almost drowned…twice. Okay, maybe I’m being dramatic, but that’s how a mother feels when a lifeguard has to jump in and save your child.  The first was during her first ever swim lesson and the second was during a random winter session her Grandpa took her to.  Both times she just walked off the toddler platform as though she could swim, and both times a lifeguard had to dive in a save her.  The first time, she seemed to have forgotten the incident just as quickly as it had happened; but the second left fear, only apparent from her refusal to get in or go near the water two months later.

    She never told us she was scared, though we asked and she would nod her head yes. In fact, come to think of it, my now four year old has never told me she was scared.

    I remember parts of being four.  I was afraid of everything.  Currently, not much has changed. I’ve always been afraid of things. I hated the typical things like monsters and ghosts, but clowns and mascots always freaked me out too.  It struck me that though I can tell Ashlynn is afraid now of swimming, she has never told me and that makes me sad.

    We always say we want to know their hopes and dreams, but what about their fears? Fear is a human condition. Facing fears is one thing, but kids need and look to parents for reassurance.  How do you reassure your child though, when you don’t know what they need reassuring on?

    The family took an impromptu, much needed weekend getaway.  After taking Ashlynn to her swim lessons and watching her be afraid to even step in the water, my husband was excited to go to a hotel and practice her swimming.  Ashlynn was doing SO good with swimming last summer, even blowing bubbles and getting her face wet.

    Ashlynn acted excited to go swimming.  Kept talking about the pool and asking if we could go swimming.  However, once there, she wouldn’t come in despite my husband’s gentle prodding with arms outstretched.  If he went to grab her, she’d pull back and start crying.  I got in the pool and tried.  I saw the fear in her eyes.  “Are you scared Ashlynn?”  I asked, and she would cry and say, “yes”.  I’d tell her that I’d catch her, but she’d still cry and shake her head no.  I finally said, “Baby, I won’t let you fall, ok?”  Immediately I saw the fear leave her eyes and she verified, “yes?”  Realizing her fear was that she would fall, I said again and more confidently, “Ashlynn, I will NEVER let you fall” and then I said a quick prayer as fear gripped ME, that in every situation the Lord would guide my hands so that I would indeed never let her fall.

    She extended her arms and swung them around my neck and we entered the pool together. I kept reassuring her that daddy wouldn’t let her fall either and she went on to jump into his arms, do her back floats, and blow her bubbles.

    One day I know she will express her fears, and as her mother, I will always be here to reassure her, protect her, and just love her.  For now though, I’ll continue to do what all mothers who have a child with apraxia do…anticipate their needs, give our best guess at their desires, and express their fears for them until they have a voice to do it all on their own.