Category: Resiliency

  • Having an Apraxia Sister is Hard.

    Having an Apraxia Sister is Hard.

    We are in the middle of a pandemic called COVID 19. 

    History books will write of it, and you will have remembered living it. 

    The Corona Virus – or COVID 19 put the world to a stand still.  Never before in the history of my lifetime or even your grandparents lifetime had the world come to a stop as it did in 2020. 

    Everything you could imagine was cancelled. 

    Basketball. Swimming.  School. Church!! When I was a child church was never cancelled. It was a phenomenon never before seen. 

    You’re Aunt Kris is a certified teacher and we were beyond blessed to have her teach you while me and daddy worked.  I had a schedule full of remedial skills to ensure you wouldn’t regress; however Kris tweeked the schedule and provided quality instruction that helped you learn.

    Even so…in the midst of it, you and Ashlynn were rough housing.  I told you to stop multiple times as I was worried someone would get hurt. On this particular day you two were rough housing normally but Ashlynn ended up flipped over from the couch slamming her head on the tile.  After telling you two calmly and numerously to not fight my patience flew out the window and I snapped at Jace, “What is wrong with you??? Go to your room!!”

    As he ran to his room he cried, “I’m sorry Ashlynn!.”

    Ashlynn was wailing.  I was scared. She doesn’t cry over physical pain.  She doesn’t.  For her to be crying I was extra worried she was even extra hurt.

    “Having an apraxia sister is hard.” 

    He didn’t say it with contempt.  He didn’t say it with anger.  He said it matter of fact with a tinge of sadness.  I asked him what was hard about it. He hung his head and said,

    Everything.

    I didn’t know what to do but to validate him and hug him.  I told him I knew it was hard, and I was sorry. It’s hard for her too having all of her disabilities.  It’s hard on me too. But this family does hard things.

    And that was that.  He left and went back to playing. Playing with HER. He’s a good kid my Jace.

    Laura Smith, M.A. CCC-SLP is a 2014 graduate of Apraxia Kids Boot Camp, has completed the PROMPT Level 1 training, and the Kaufman Speech to Language Protocol (K-SLP). She is the author of Overcoming Apraxia and has lectured throughout the United States on CAS and related issues. Currently, Laura is a practicing SLP specializing in apraxia at her clinic A Mile High Speech Therapy in Aurora, Colorado.

  • Growing up with CAS: Still achieving her goals

    Growing up with CAS: Still achieving her goals

    Today, as part of my growing up with CAS series, I am so pleased to welcome back Reagan Crabtree!  I first interviewed Reagan when she was still a teenager a little over THREE years ago!  A lot can change in three years! Reagan is currently double enrolled at a community college and a university studying broadcast journalism and political science.

    Hi Reagan!  Thank you for coming back!  I have loved getting to know you more over the years and hope one day we can finally meet in person! I’m very interested to know how college is going.  

    What are you studying?

    Communications and political science

    Do you have or need accommodations?  

    Yes, I have accommodations. Extra testing quiet room, recording device for note taking. I go to a support room to do my tests. I still struggle with taking tests in the other room. I look up and around when I hear a sound.

    Since I haven’t talked to you since before you graduated high-school, can you tell me about your high–school graduation?  Who was there and what was the day like?

     It felt so great to look back on my journey and see how far I have come from when I started school.

    I know you are a huge advocate not only for apraxia, but for disabilities in general.  Can you tell me what your big dream is?

    To work on the Today show behind the senses and show people how children that have dreams can also achieve them.

    You recently participated in the Rose Bowl Parade on the Easter Seals float!  Can you tell my readers a little more about Easter Seals and how they have helped you?

    Easter Seals supports me with school and helping me talk to teachers. If I didn’t have Easter seals I would not be where I am today. I my fourth year of college working hard to achieve my goals.

    Despite so many challenges, you always seem to remain positive and upbeat.  What advice do you have for others in your situation who want to give up?

    Don’t give up and get supports that can help you in college.

    My final question is, what inspires you?  

    Karen Myers because all work in journalism being deaf from birth inspires me everyday to become I journalist. To show others that people with disabilities can do it. It might be hard but we can still achieve our goals!

    Thanks Reagan for coming back and updating us on your journey!  I just know you are meant for bigger things! You and I are huge advocates for neurodiversity, and there is such a need for more disability stories if we want a society that is fully inclusive for people of all different abilities!   I look forward to watching your continued journey and success!

     

  • An open letter to the well meaning “I’m here for you.”

    An open letter to the well meaning “I’m here for you.”

    May is Apraxia Awareness Month and Mental Health Awareness Month.  From the surface, it does not seem like they have very much in common.  Apraxia is a rare and severe speech disorder in children, and mental health has to do with, well mental health.  Ironically, they are the two conditions I write about the most.

    I like and do believe that most people are good. Regardless though of how good of intentions a person may have, I think we many times miss the opportunity we actually want to have happen.  I learned this the hard way unfortunately, when I wrote a popular piece on The Mighty for suicide prevention entitled “The Two Word I Would Have Told My Friend Who Died By Suicide.”

    In this piece, I lament that had my friend just called me I would have been there.  I say this as complete truth.  I know I would have.  I just would have.  Unless I had been gravely ill or incapacitated, had my friend called me during her time of crisis I would have been there.  Who could argue I didn’t have good intentions?  Well to my surprise, many did actually.  Many people pointed out that a person with depression isn’t going to reach out to anyone because they already feel like a burden.  Many people pointed out had I really wanted to help her it would have been I that would have reached out instead.  Oh, and not just reached out and asked, “How can I help you?”  No, not that.  I should have kept reaching out and reaching out because depression is insidious, trapping the person inside.

    Obviously, that was a hard pill to swallow.  However, Maya Angelou once said, “When you know better, you do better.”  In other words, there is no point in feeling guilty about the past because you didn’t know; but once you know, you have an obligation to do better in the future.  Knowing what I know now, I would have kept reaching out.

    This may seem like an odd jump, but the same is true when it comes to mothers to a child with a disability, or heck, the person WITH a disability.   The road is HARD.  That doesn’t mean we would change the road, or wish we had a different car for the road; but it is hard and many times lonely road.   Even close family members will not understand the struggle.  For all those of you telling your friends things like “I’m here if you need me” or “Call anytime” or “Let me know if you need a break.”  I’m asking you to just assume they do and go help them.  Show them that you are there for them.  Offer a day and time you are taking their kids or bringing them coffee and just going to have an adult conversation with them.

    No one, whether it is depression, special needs parenting, or being the person with a disability wants to feel like they are a burden or imposing themselves on anyone.  SHOW them you are there for them.  ACTION.  This is blunt but true.  No one cares what you say, they care what you do.  If you, or me, or anyone else really means “I’m here for you,” then do it.  Show it!

    Currently, I feel like people don’t understand another person’s plight that is not their own until they experience it themselves.  A person who has never had depression doesn’t understand why a person with depression wouldn’t reach out.  A person who has never had a child with special needs, doesn’t understand how difficult it is until or unless they have a child who has a disability.  A person who has never been a single mom doesn’t understand how difficult it is to be a single mom unless the person goes through being a single mom themselves.

    This doesn’t have to be the case!  In this age of the internet and information and knowledge at our fingertips, we have an even greater chance at becoming better people.  We may not know first hand the experiences of others, but we can read about them and then take actions to improving, enriching, and enhancing the lives of each other.

    I could have been indignant that those who actually had depression told me my well-meaning “had she just called me” didn’t hold any weight; or I could learn from it.  I chose the latter and I know that in the future, if I ever think anyone is struggling again I won’t wait for their phone call, but will deliver it myself.

    Le’ts let this age of information make our lives and the lives of those around us better, because knowledge is power and we have knowledge at our fingertips. If we know that it is a universal truth that everyone in this life will have or will be going through some sort of struggle, let’s choose to be kind and not simply say “we are here if you need me,” but take the actions that show others we truly care.

    Let this Apraxia Awareness Month and Mental Health Awareness Month not just be a crazy coincidence, but a reminder that everyone on this planet is experiencing joys, fears, heartaches, and love and that is simply this thing called LIFE.  Beyond the “I’m here for you,” let’s let this month be a chance for us to show it through our actions.  Mark Twain said, “Twenty years from now you will be more disappointed in the things you didn’t do, than by the things you did do.”  So in this month of May, what are YOU going to DO to make a difference?

     

  • Resiliency: A letter to my child

    Resiliency: A letter to my child

    My dear child,
    I want you to know that you can do and be anything you choose to be.  You are the master of the sea, and as was told to us in scripture “I can do anything in Christ who strengthens me.” 

    You need to remember you were BLESSED with life.  When God breathed his breathe into you, He knew EXACTLY what he was doing.  Remember you have a gift, and your purpose in life is to find your gift and use it to help others.

    You will likely struggle to learn throughout your academic life, but never confuse struggle to learn with being ABLE to learn.  You are living proof how powerful the human spirit is and how anything is possible when a person refuses to give up.  You have taught ME so much about facing and overcoming fears, and I know what it means now when people say FEAR can be two definitions:

    1. Fear Everything And Run
    2. Face Everything and RISE

    You will never have to face anything though alone.  I will always be here for you.  When I’m hard on you it’s only because I believe in you and KNOW you can do it.  Always know this about yourself too.

    The sign that someone is alive is that they experience good times and bad times, but bad times never come to stay: They come to PASS.  If we can stay strong, relying on God as our compass, and truly having faith as small as a mustard seed as he has taught us; we can overcome every obstacle that is put in our way.  Not only can we overcome it though, we can learn and grow from it.  Running from pain is not the answer.  It’s the pain that will take us to the next level if we have the courage to face it straight on.  In this way, we are truly living as God wanted us.  If we can face the pain head on, the joy waiting on the other side will be a force much stronger and better than our heartache.

    Sometimes in life, or maybe many times, you will feel like life has backed you into a corner.  You will feel at times like giving up.  You might listen to a little voice inside your head telling you lies.  You will know they are lies when they say anything except how you have greatness within you.  Remember, the bible tells us we were fearfully and wonderfully made, made in God’s very own image and likeness.  Therefore any negative talk or self-doubt is a lie.  Recognize it as a lie and replace it with something that you KNOW you are.  You are strong.  You are kind.  You are courageous.  You face every challenge head on.  You have NEVER NOT been able to overcome anything that was in your way.  Always remember this and dismiss the rest.  Remember that you can.  You will.  You must.

    Life will not be easy, but it’s not easy for anyone.  Life is meant to be lived and to experience both the joys and pain.  If life has you down one day, I need you to promise me you will not give up.  You will not give in.  You will not let it beat you.  Instead, you will get up like you always have and live your purpose.

    It’s going to storm sometimes.  I WILL

    It’s going to hurt sometimes. I WILL

    It’s going to feel like you can’t sometimes.  I WILL

    You’re going to feel like giving up sometimes. I WILL

    You’re going to say I can’t sometimes.  I WILL

    Someone hurt you deeply.  I WILL

    Just keep telling yourself

    I WILL

    I WILL

    I WILL

    Too many people give up.  It’s easier to give up.  What’s not easy is to keep going.  You’re not a giver upper though. If it were easy, everybody would do it.  If life has you down, I need you to get up, and prove them wrong.  Remember, just when the caterpillar thought he would die, he turned into a butterfly.  We will never know we can fly, if we don’t push ourselves through the pain.

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