Apraxia Walker Spotlight: My renewed faith and hope in my Shining Star by Jenny Boncich

It goes without saying that all my babies are amazing and wonderful!  It’s true. When I delivered my 3rd child, I didn’t know it at the time, but I had just given birth to a star!  A shining STAR!  I know, I know, every woman believes her child is a star!  But the kind of star I am talking is pretty special.  My son Mark was born with Childhood Apraxia of

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Speaking in scripts with a story in her eyes

Thanks to funding from Small Steps, I have Ashlynn back in therapy with her private SLP, who is also my mentor and now friend.  The other night she was updating me on her progress and what happened in the session.  I take my daughter to her house, so occasionally her husband or dogs may walk by and apparently distract Ashlynn.  She was remarking on Ashlynn’s ability to hold a pretty

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Ignorance is bliss, but Awareness is POWER

Ignorance is bliss, but Awareness is POWER

Ignorance is bliss.  Yes, yes it is.  I can tell you this from personal experience.  If ignorance is bliss, what is hindsight?  Oh right, yes, I know.  Hindsight is 20/20, meaning looking at events afterward seem so much clearer than in the moment.  That much may be true. I was going through some old home movies.  Our 10 year wedding anniversary is coming up, and I guess I was feeling

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Anything but Silent book review and giveaway!

I’m continuing on with Day 4 of giveaways leading up to Apraxia Awareness Day on May 14th! Today I am reviewing the book ANYTHING BUT SILENT by Kathy and Kate Hennessy.  Kathy Hennessy is the mother to Kate who has pure CAS and another son Andy who has global apraxia and SPD. The book rotates chapters from Kathy’s point of view to Kate’s point of view.  First of all, I

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Why we’ll never stop working

Why we’ll never stop working

I’ve been down lately.  Really, really down.  It pretty much started at Ashlynn’s re-evaluation meeting and went downhill from there.  For all the work she’s done, for how far she has come, for what she knows in the face of so many challenges,  it was like a slap in the face. It’s really not anyone’s fault.  It’s just the way it is.  I’m dealing with mixed expressive/receptive language issues now.

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Still we rise

Still we rise

I received all of Ashlynn’s reports from her re-evaluation.  I knew it would be hard.  It’s hard to read those scores and things about your baby.  However, I was also proud.  So proud of how far she has come.  She is the hardest working child I know.  The social worker and special education teacher seem to understand her the best.  They listed her strengths, which are many.  They were thoughtful

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