Diagnosis, Disability, and Finding your Tribe

Diagnosis, Disability, and Finding your Tribe

However, we have our people now.  We have our tribe.  We have others who understand.  They understand that sometimes you are in such a state of deep grief you can do nothing else but cry and cannot face the world that day. 

You know you need awareness when you know more than the “experts.”

You know you need awareness when you know more than the “experts.”

About a year ago I switched insurance from my husband’s to mine, in order to leave no stone left unturned.  I know that kids with apraxia can have some sort of positive indicator on a brain MRI, or genetic marker.  I had yet to do any of that testing, and so I decided this was the year to do it. My husband questioned why.  Is there a reason to know?

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What is executive functioning and why do you need to know?

What is executive functioning and why do you need to know?

Does your child struggle with impulse control? Do they run out or touch things they know they shouldn’t but seem unable to help themselves despite consequences?  Do they struggle to get dressed?  Does it take you 30 minutes longer to get out the door in the morning than you think it should?  Do they frequently lose things like important papers from teachers? Is their desk, backpack, and folders completely disorganized and

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