Category: Apraxia

  • Just love

    Just love

    It’s really not ok to develop a severe disliking for a child.  They are, after all, just a child.  However, there is a little girl at Ashlynn’s school who is very hard to like.  She’s rude, rolls her eyes, and bosses Ashlynn around.  She has mocked my son (who’s a baby) when he was talking, refused to say “hello” to Ashlynn even as Ashlynn greets her with a cheerful “hello,” and demanded Ashlynn stop hugging a little boy in her class among other things.  All of this has happened in the first five minutes before school started, so I can’t help what wonder how this girl is to Ashlynn the rest of the day; and my anger stemming from somewhere in the depths of me, begins to rise giving way to some not so nice feelings toward this little girl!

    The other day for the class holiday party, I couldn’t go so it was just my husband and Ashlynn.  Feeling like I was missing out, I text messaged him begging for a picture.  He took the most adorable picture of Ashlynn.  I smiled as I saw it, and then I saw she was sitting next to……that girl.  Why?  “Why is she sitting next to this little girl who has an attitude problem and is ALWAYS rude to her?” I huffed in my mind.

    Well today, as I dropped her off for school, we were once again graced by the little girl’s rudeness.  She refused to say hello, and only spoke to tell Ashlynn to get away from the door, declaring SHE was first.  Ashlynn backed away and the girl with an air of haughtiness gestured, “YOU can get behind me.”

    Okay really??  She’s four!  What the heck!  Ashlynn sweetly nodded her head and answered “yes?”  Of course since she was in fact there first, there wasn’t much I could say, as the rules of preschool are very black and white.  However, the rules of preschool don’t dictate my feelings, which were only growing into more of a cancer now.

    As I left the school, I called my mom asking her how she dealt with these problems?  My kid’s only four and I’m already mad at her “friends” and developing hate for a mere child.  I need to get it together.  My mom had great advice, including “let go and let God.”  She also reminded me that in life we all have to deal with these people at different times, and unfortunately, our kids have to learn that too even though it may hurt us.  She made me feel better, and I thought I had put it to rest.

    I started thinking though. Ashlynn has only love in her heart.  She’s the target, not me; and yet she still tells her hello everyday with a big smile.  She still hugs kids when they want hugs (or maybe even if they don’t), and she still sits with her at a party, possibly because no one else will.  I know it wasn’t because she doesn’t have any friends, because all the teachers assure me frequently how well liked Ashlynn is and how she is friends with everyone.  I realized I needed to take a tip from Ashlynn.  There is no room for hatred in our heart.  Love is not only easier, but it’s kinder and makes us feel better.  This little girl is unhappy, but Ashlynn always has a smile.  She has a smile because she dismisses the eye rolling, the lack of manners or social etiquette, and just wants to love.  If Ashlynn can love so simply, than so can I.

    She’s a real class act that Ashlynn.

  • Don’t dare to compare

    Don’t dare to compare

    Ashlynn was my first child.  In a way, it was fortunate I had nothing to compare her to, and in a way, it was unfortunate I had nothing to compare her to.

    My son Jace is my second child and is currently 16 months.  He not only walks…he RUNS.  He not only babbles and says words, he puts two and three words together!!  Every time he hits a milestone, my heart bursts with pride; and every time he hits a milestone a tinge of sadness seeps in when I think of just how long it took Ashlynn to do anything he does. 

    I hate that.  I hate comparing.  I wish that when someone told me how they know they heard Jace say “what’s over there” in his baby jargon that they could understand, I could smile longer than a fleeting moment until I wondered when Ashlynn finally put those three words together.  I wish when someone told me how they swear they heard him singing the ABC’s, I could beam with pride longer than a second before my mind swirled to countless days singing ABC’s with Ashlynn on the iPad, the fridge toy, the vacuum toy, in the car, while reading a book and still not hearing her be able to say “A.”  I wish that when he drank out of a real cup, a straw, a water bottle and looked at me with pride, I could be there only in that moment with him, and not start to think about how Ashlynn still chokes drinking her sippy cup.

    These pictures show Jace age 16 months, and Ashlynn age 18 months.  In her picture you can see her open mouth posture (low tone) and also see the flexion in her feet.  She was just barely walking and walked on her toes.  I stretched out her calves everyday in the bathtub. 

    It makes me think about a quote from Temple Grandin, “There needs to be a lot more emphasis on what a kid can do, instead of what he cannot do.” 

    So let me say, even though Ashlynn didn’t talk, or sing her ABC’s, her sweet smile and bright eyes lit up a room.  Her soft and gentle touch melted hearts, and her giggle was and is still contagious.  She may not have drank from a real cup or a straw, but she would hold out a goldfish to a friend to “share” and she would pat the seat next to her forcing whomever to sit down and enjoy her company. She may not have ran when we went outside, but she would lay down next to me staring at the clouds and sharing a perfect moment in the summer sun.  She may not have told me when she was hurt, but she was the first to look concerned if she thought her dad or I was. 

    Yes, there does need to be a lot more emphasis on what a child CAN do, and from now on, I hope to not compare, but to focus on what each child does well!  I’m so proud of them BOTH and I want to be proud of each of them and revel in those moments.

     
  • Ashlynn Trick or Treat

    Ashlynn Trick or Treat

    Ashlynn turned four this Halloween, and it brought another milestone: being able to say “trick or treat” and be understood!  When she was two, she couldn’t even attempt to say it.  At three, she could say “ee o ee” but then clammed up and wouldn’t say it on command.

    At four though, we had success!  She still needed prompting and encouragement, but she was able to say an intelligible “trick or treat” and this was her best Halloween yet.  You can click on the link at http://www.youtube.com/watch?v=l2BsWccC4Nk to hear it.  Definitely one proud momma here 🙂  Happy Halloween!

    https://youtube.com/watch?v=l2BsWccC4Nk%3Fversion%3D3%26autohide%3D1%26showinfo%3D1%26autoplay%3D1%26autohide%3D1%26attribution_tag%3Dtgo3ZEvB8eCF38nnzTbm0g%26feature%3Dshare

  • Happy Birthday Song!  Ashlynn turns four

    Happy Birthday Song! Ashlynn turns four

    Ashlynn turned four this past weekend and my husband and I were just beaming with pride.  Last year, she couldn’t blow out her candles, sing the Happy Birthday Song, much less even say Happy Birthday.

    When she woke up in the morning, balloons were waiting for her in our hallway.  Before she hit the bathroom she excitedly said “BAYOONS!!”

    As she stepped in the kitchen, we had a Minnie Mouse Birthday banner, tablecloth, and big balloon decorating the kitchen.  She could not stop talking!  “Minnie right there, and Minnie right there, and Ashlynn”s Happy Birthday!”  When my husband came out in the kitchen she called “Look daddy!  Minnie! Ashlynn’s Happy Birthday!”  When he asked her how old she was, she proudly held up four fingers and pronounced “fowa.”  She just recently has been generalizing the ‘f’ and she said it correctly without any cues. Also, last year, the motor plan to hold up the right amount of fingers just wasn’t there; but this year, with a little planning, she pulled in her thumb and held up all four fingers.  My husband and I exchanged looks of pride knowing what the other was thinking, without having to speak a word.

    When we got in the car to go the Pumpkin Patch, all by herself we heard a happy little voice coming from the backseat, “Happy Birthday to you, Happy Birthday to you, Happy Birthday to ASH – IN, Happy Birthday to you!”  This time when we exchanged looks, we both had a little tear in our eye.

  • Superhero Brave

    Superhero Brave

    For those of you familiar with my blog, I’ve spoke of “Ben” before. A little boy on my school caseload from a Spanish speaking family who has CAS and is nonverbal. However, IQ testing shows him in the 75th percentile! He’s sooo smart. I met him last year in Kindergarten, and we formed an instant bond.

    His Kindergarten teacher was frustrated that he wouldn’t talk; and I’m not sure if she felt it was a reflection on her, but she really wasn’t that supportive of him.
    This year is different! He has a new teacher and she sees what I see, what I saw. She’s sees a smart, friendly, lovable little boy who wants to talk, but just needs people to believe in him and boost his confidence. Every time I see her she starts a sentence with, “you won’t believe this” or “I LOVE him.” Yesterday she told me she believes this year is going to be HIS year. Starting from the first day when she was going around having kids do introductions, she frowned upon getting to Ben and having the other children speak up and say, “Oh he doesn’t talk.” She immediately stuck up for him, telling the other children yes he did talk and that people talk in different ways. Some use Spanish, some English, some use their hands, some use gestures, and some use devices.
    Ben’s corners of his mouth got just a little bit wider.
    Another day, one of the kids noticed that Ben appeared to be talking to the class frog and remarked, “Look! I think Ben is talking!”
    Her reply?
    “Of course he’s talking! Didn’t I tell you Ben talks?”
    Ben’s chest puffed out just a little bit further.
    And then there was today. The icing on the cake.  I picked him up and she calls me over to brag about an assignment he finished first and attempted to share with the class. Picking up on her hint, I praised him loudly in front of the other children. As we leave the too, a little classmate returning from the bathroom enthusiastically called, “Bye Ben!” Now Ben knows how to say bye with perfect clarity. In fact, he says it to me everyday. He pressed his lips together, but the anxiety was too much and the boy left before Ben uttered a sound. I decided to scratch the lesson plan for that day, and instead I asked him if he knew what brave meant.
    I had him draw a picture of someone he thought was brave and I told him I would do the same. We sat at different tables, and I told him not to peek.
    When he was finished, he drew a picture of Hulk and Captain America. I asked him why they were brave and with a smile he pantomined strength and then pantomined a sword motion. I verified he thought they were brave because they were strong and had swords to which he eagerly nodded his affirmation. I then wrote on the back that Hulk and Captain America are brave because they are strong, have swords, and I added they fight bad guys. He tapped my arm and held up three fingers. I said, “three bad guys?” to which he nodded apparently satisfied.
    He then pointed to my picture. I asked him if he wanted to see mine and he again nodded yes. As he looked at a picture of a little boy with a blue school uniform, he looked at me puzzled. I asked him, “Don’t you know who this is?” Ironically, I had also just happened to also draw him holding a sword fighting a word bubble in his head! What luck!
    “It’s you Ben.”
    His eyes lit up and he pointed to himself incredulously.
    “Yes” I said. “You are my superhero because even though talking is so scary, you still try, and that’s what makes you brave.”
    Now that smile was a full blown grin.
    I went onto tell him I needed him to be even more brave than he already was though. I needed him to be superhero brave when it’s time to talk. We then stapled the pages and walked back to class.

    At the end of the day, the Facebook support group had convinced me to tell his parents about the lesson; and since they only spoke Spanish, I decided to go out with the teacher at dismissal and have her translate. When I walked in the classroom, all the kids were sitting on the carpet with their backpacks on their backs in preparation to go home.  In the middle was Ben, with his backpack on, but our book in his lap. It did mean something to him!  As luck would have it, BOTH parents came to pick him up that day.  As the teacher translated, his mother choked up and gave him a big hug as they left to go home.

    Now his chest was puffed out just about as far as it go!  That’s what superhero brave is all about!

     

  • Ashlynn update 3:10

    Ashlynn said her first compound sentence yesterday. It took me so much by surprise that I almost ruined it by interrupting her.

    I picked her up from school asking the usual questions and getting the usual answers,
         “How was school?”
         “Good.” (Dood)

         “What did you do?”
         “Play” (pay)

         “Who did you play with?”
         “PLAY!!” she says impatiently.

         “I know, but WHO did you play with?” I asked.
         “Evelyn (Eveyin)

    As I was about to interrupt she said,
    “She’s nice and she’s funny (sunny) too.”

    A six word compound sentence!!! Music to my ears!