Category: apraxia blog

  • Why we need milestones, and why I can still be proud of my daughter.

    Why we need milestones, and why I can still be proud of my daughter.

    I recently read a blog article about not buying into speech and language milestones.  The writer asserts:

    “Because here’s what I think of traditional milestones: f*ck them…………My baby will do that when she’s ready. This is not the Olympics, people.”

    She went onto explain that parents seem to make milestones into some sort of competition, and she doesn’t want to buy into that.  I get her point probably even more poignantly that she does.  

    My child was late with all of her milestones, and because she was late, I felt the sting and continue to feel the sting every time someone else’s child on social media or in my life meets a milestone with which my daughter still struggles.   

    This author was already sick of the comparisons, real or imagined, and just wanted to enjoy her baby.  Yeah I can relate, but lucky for her it seems, her child was just on their own timeline and would still go on to develop typically.  Some kids aren’t so lucky, and those “milestones” become very important so that kids can get early intervention when they need it.

    Oh she goes onto say, “Is your pediatrician happy at your baby’s checkups? Good……remind yourself that no one’s counting.”

    Unless of course your pediatrician IS concerned, or worse they’re not and your child misses valuable early intervention.  

    Oh, and no one’s counting, unless of course you get to feel a punch to the gut when you are faced with low standard scores, percentile ranks, and descriptors like “definite dysfunction” or “severe apraxia of speech” or “below average,” in black and white reports that have your child’s name on the top.  Lucky for her, her pediatrician is happy and no one is counting.  

    What about the other kids she wasn’t considering who don’t meet them?  

    Yes, milestones make any parent crazy.  Yes, parents can get stuck on being overly proud of their offspring, but then again, they should be.  They’re the parent!  I’m proud of Ashlynn for other qualities that maybe some other kids her age don’t yet possess as adeptly including: 
    Empathy
    Sensitivity
    Kindness
    Thoughtfulness
    Optimism
    Perseverance
    Bravery
    Compassion

    And why shouldn’t I be?  I’m her parent, and I’m supposed to be proud of what she is good at.  I don’t look at other parents with disdain who have kids meeting or blowing the lid off the milestones.  Jealousy maybe, but not disdain.  I think, good for them.  They should be proud of their child,  and every child deserves and needs their parents to be proud of them for their unique God given talents.

    So, I decided to write a printable for the parents who are forced to look at milestones.  Who have googled milestones and felt the pit in their stomach when they know their child isn’t meeting them. I wrote this so that parents will not say “F*ck them” but will instead pull up their big girl panties, and get the help they need for their child, no matter how hard and painful it is.


    Speech and Language Milestones: Birth to 3




  • Speech and Language with Post it Notes

    Speech and Language with Post it Notes

    My daughter loves Post it Notes.  LOVES them.  She loves writing some small scribble on them and then proudly sticking them up around the house to put on display.

    Today we drew pictures that included her target sounds to work on speech, but we also drew shapes to work on our pre-writing strokes for OT.

    Based on the response from my facebook post, my kid’s not alone in loving them!  Try it!  Easy and fun way to get speech practice in at home.

  • Check out my Q & A with “Trust Me, I’m a Mom: Let’s Talk Tuesday!

    Check out my Q & A with “Trust Me, I’m a Mom: Let’s Talk Tuesday!

    Today I’m so excited to be a guest blogger on Trust me, I’m a Mom: Let’s Talk Tuesday.  Please check it out!

    Trust Me, I’m a Mom: Let’s Talk Tuesday – Q&A With An SLP & Mommy of Ap…: ‘Let’s Talk Tuesday’ is a bi-weekly post series with ideas on how you can help your child of any ability, but especially those with Apraxia.

  • “Say what you want to say, and let the words fall out.  I want to see, I want to see you be brave.”

    “Say what you want to say, and let the words fall out. I want to see, I want to see you be brave.”

    I heard a new Sara Bareilles song the other day.  I love music, but I really felt like this song was written for A.  It’s been a struggle to get her words out.  Even now, the other day at the park she was talking to a little girl appropriately saying ‘come on” and “let’s go again!”  It sounded more like, “tum on!” and “yet do adain” but she was DOING it.  She was putting herself out there, and REALLY talking.

    After a short time, the little girl asked her, “Are you a baby?”  A, looking confused, just covered her eyes and laughed at her.  On the sidelines, my heart broke.  How DARE this child say that!!!  Didn’t she know how much it took for my daughter to put herself out there and talk??!!

    Of course the rational side of me realizes this girl is just a kid who didn’t mean to be malicious or mean.  But the mommy in me wanted to teach her a lesson.  Instead, as usual, the person doing the teaching was A.  As she laughed at this little girl, it was really A who had the last laugh.  It was my daughter who is so wise despite her challenges.  Much wiser than me.

    Shortly after I heard this new song.

    “Say what you want to say, and let the words fall out.  Honestly, I want to see you be brave.”

    A is braver in one hour than I ever have been in my entire life.  I love you little girl, and I love seeing you be “BRAVE.”

    http://www.youtube.com/watch?v=QUQsqBqxoR4

     

  • Ashlynn play boats with daddy.

    Ashlynn play boats with daddy.

    This past Fourth of July weekend we went on our annual trip to Glendo State Park in Wyoming. My husband and I have been going since before we had kids. Without getting into all the details, once you go to Glendo for the Fourth, you always go back if you can! Last year we couldn’t go because I was having my son so we were very excited.

    When we went to the beach, Ashlynn saw my husband pull up on the jetski. She looked at her grandpa and me and announced, “Ashlynn play boats with Daddy?” I teared up immediately. I know I sound like such a sap, but when you are the parent of someone with apraxia and they say things and put novel words together in context, it is just the best feeling! I asked her if she wanted to ride the jetski with daddy, to which she enthusiastically replied “yes.” I of course then scripted the appropriate  way to ask the question and had her repeat, I want to ride the jetski with daddy.

    We still have a ways to go. We’ve been working on her using the first person “I” since before school was out. It’s just such a testament to how much repetition a child with apraxia needs, because I correct her and make her repeat her phrases and sentences using “I” every time she refers to herself as Ashlynn. We were so intent on getting her to learn her name that now it’s hard to get her to use something else.  However, I do know that she will get that too, and that’s a comforting feeling.

    Two years ago we took her to Glendo when she was 21 months old. At that time she had just learned to start walking really well and she only had a handful of word approximations. Unfortunately, anything that wasn’t a flat surface was difficult to walk on, so we still had to help her walk everywhere. She only had a handful of word approximations, and her favorite thing to say was “a dah.” and “hi.”  I’ve learned from my parent support group that most kids with apraxia have a go to sound that they use for everything, and “a dah” was Ashlynn’s.

    Fast forward though two years (and a lot of therapy and extracurricular activities to work on motor skills) and she was running on the beach and bending down on the sand. She is still unsteady in the waves and can’t be trusted around the fire pit for fear she will lose her balance and fall, but that will be a progress report for another time. For now, we celebrate that in two short years, a dah was replaced with a complex sentence asking to play boats with daddy, and now she fearlessly got up on the jetski.

    I look forward to coming years when she will be navigating around the campsite without fear of falling, swimming in the water, and maybe waterskiing or jetskiing on her own.  Also, I excitedly anticipate her talking our ear off around the campfire.