Fight night: Are YOU in?

Fight night: Are YOU in?

Before Ronda’s last fight, I tried to rally our apraxia community to participate in a hashtag campaign showing our suport.  You can find the post here: Why I fight: Inspiration from Ronda Rousey I have actually had that post hidden until tonight since at that time, Ronda had yet to say she had apraxia and I was getting a lot of backlash from people who didn’t really seem to see

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I waited for this moment for so long…so why I am still sad?

I waited for this moment for so long…so why I am still sad?

Original appeared 9/13/15 My husband’s sister was married last night.  Ashlynn was the flower girl and like any flower girl, she absolutely adored all the attention.  Ashlynn can speak now, and speak well where most people understand her.  If she’s at a loss for words, she’s smart and falls back onto one of her scripts, her most favorite being, “what are you doing?” She’s smart like that, because it takes

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To the woman who said my daughter “really stood out.”

To the woman who said my daughter “really stood out.”

Original post appeared 10/5/2015 We all went to a pumpkin festival over the weekend.  My kids had a blast riding the wagon, picking out their pumpkins, drinking apple cider, and their favorite……dancing to the band.  It was  a bluegrass band with a standup bass, a fiddle, a guitar, and the occasional banjo.  My kids loved dancing and when songs came up they knew like “Skip to my Lou” and “Shoo

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What we can learn from AnnMaria DeMars (aka: Ronda’s mom)

What we can learn from AnnMaria DeMars (aka: Ronda’s mom)

Original post first appeared 10/1/15 In all the hype and excitement our community gained from learning Ronda Rousey had CAS, one very important piece was left out.  This piece, was her mother. Ronda is a living, breathing, symbol of hope for our community.  She speaks beautifully in interviews without any hint (except maybe to a trained ear) of apraxia at all.  She has been in movies and on talk shows

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When the dust settles

When the dust settles

This originally appeared 9/28/15 This last summer has been a whirlwind for me.  Starting with meeting Ronda Rousey the end of May, my story going viral two months later, and then ending up on GMA, a national platform in which to spread apraxia awareness.  Though there were many surprises, the biggest and most amazing of all was a personalized video to me and Ashlynn from Ronda herself.  You can watch

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A letter from Ashlynn?  To my future self….

A letter from Ashlynn? To my future self….

Original post date appeared 9/7/15 Starting this blog, I had intended to spread awareness in my small part of the world and hopefully help some others along the way.  Life is funny though, because unexpectedly, the comments from others in response to my blog ended up giving hope back to me.   Today was one of those days.  Started out normal.  Hectic morning, trying to pack two backpacks, a diaper

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