Category: apraxia blog

  • Why would anyone CHOOSE to coordinate a walk.

    Why would anyone CHOOSE to coordinate a walk.

    I am the current walk coordinator for the Denver Walk for Apraxia of Speech, benefiting the Childhood Apraxia of Speech Association of North America.

    Before I was walk coordinator, I was merely a first year participant who had signed my family up to walk for my daughter Ashlynn.  I remember signing up at the very last minute right before the T-shirt deadline.  I did this, despite knowing about it for months before; because I wanted to make sure nothing else more important came up.    It didn’t, so in 2014, we attended the Denver Walk for Apraxia.  I had no idea what to expect.  I just figured it would be some boring walk around the lake, but it would benefit CASANA, and that would be a good thing for awareness.

    I do remember receiving emphatic emails from the current coordinator about raising money, everyone donating even just five more dollars etc etc, for us to meet our goal.  She had a goal of 30k and I’m pretty sure they met it that year.  I never asked for donations or solicited anyone outside our immediate circle despite this.  I honestly figured, what could my meager attempts do? Leave it to the big wigs and people with connections to bring in the money.

    The walk was AMAZING.  I had NO idea Ashlynn would receive a medal in a medal ceremony, or that there would be activities beforehand that would be fun.  I WAS on the email lists telling me this stuff, but for some reason, I must have missed them.

    After that walk though, I couldn’t imagine Ashlynn not having another.  The previous walk coordinators were stepping down after 7 years or so, and they were asking for new volunteers.  I did actually read these emails, but I just assumed someone else would take the place.  I seriously had no buy in, and no culpability.

    Come February or so of 2015, I was talking to Sharon Gretz, the executive director of CASANA, and through the course of the conversation I realized there wasn’t going to be a Denver walk that year.

    What???? I inquired.

    Well, the previous coordinators stepped down, and there is no one to run it, was the answer.  If someone doesn’t step up soon, there can’t be a walk this year since planning needs to start months in advance.

    Shit.  In that moment I KNEW I had to do it.  The experience had been SO amazing for Ashlynn and our family that I couldn’t imagine her not having that again.

    I’m already stretched super thin.  I have this desire to be as involved a mom as possible while being an SLP.  I’m working at my children’s school during the day, and then working nights and weekends so my children can be with their father when I am not there.  How on EARTH would I plan a walk?  Screw it.  Minor details that don’t matter because apparently if I don’t, the walk won’t happen this year.

    I pitched it to my husband.  The answer was pretty much…

    NO

    Without going into detail, his reasons were valid.  He knows me and he knows I would devote all this time and energy I already don’t have into this.  Long story short and many compromises later…I ended up being the Denver Walk Coordinator last year.  I originally began not feeling any particular commitment to it, other than making sure Ashlynn was honored as she was the year before.  I hate to admit my husband was right, but the Type A in me started whispering to me that I can’t have my name attached to an event and not have it be the best I could do.

    To make a walk happen is fairly easy.  Set the date, secure the place, tell your immediate people about it, sort the walk day materials for the small gathering, and you’re set.

    To make a LARGE walk happen, and a walk I felt I could be proud of, takes WAAAAYYYYY more work.  I decided I wanted food at my walk, I wanted entertainment and family fun.  I wanted the award ceremony to be powerful so I wanted music. I wanted the day remembered picture perfectly, so I wanted a photographer.  I wanted the kids to have fun, like at a carnival, so I wanted games, and clowns, and characters.  I didn’t want people to be bored, so I wanted activities.   12079720_10205988736930094_3556973707872741955_n 12079199_10205988758250627_1805454580116476736_n12036832_10205988733009996_8087247006347836086_n

    I didn’t want people to be hungry or thirsty, so I wanted food and beverages.  Oh, and I wanted to make more money for CASANA so I wanted an awesome raffle table that would entice people to buy more raffle tickets with all proceeds going back to CASANA.

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    Oh, and in the middle of all of it, I became 100% committed to CASANA.  They keep their staff small and centralized to Pittsburgh, and rely on the help of walk volunteers around the country to raise their money.  The reason for this, is to maximize the amount of money raised going directly BACK into the community to help our kids via research, iPads, grants for speech therapy etc.

    I realized I wanted to help maximize their goal.  CASANA was life changing for my family.  I needed to raise enough money so they are life changing for as many families as possible in my position.  It literally becomes an obsession and a vocation.  I went from only caring about honoring Ashlynn, to making sure I raise enough money to help every kid and family possible affected by CAS in North America.  I’m not exaggerating people.

    THIS is the job of a walk coordinator.  It is soooo much more than just organizing a walk that gives everyone warm and fuzzy feelings.  You become so personally invested.  You can’t understand why people register late.  You can’t understand why people don’t make it their priority.  You can’t understand why people are only peripherally involved.  You can’t understand why people don’t understand they need to register.  You can’t understand why people are okay with buying shirts from other people to attend your event. You become SO obsessed with not only helping your own child, but realizing how much your own child benefited, that you now want to help EVERY SINGLE child who has struggled like your own.

    Oh, and might I add, it’s easy to do when you know the staff at CASANA.  As a walk coordinator, you become personally involved with them, and by personally becoming involved with them, you realize even MORE, if you didn’t before…….how this non-profit you are out raising money for, is truly staffed with selfless people.  You hear these horror stories on the news all the time of executive directors taking thousands of dollars in profit from the “non-profit.”  Not true at CASANA. You learn what these people make and I honestly think they SHOULD be making more for all the hours they put into this non-profit.  When you, in your heart, believe, like I do, that the staff at CASANA (all of them) should be making more than they earn because they truly EARN every single penny…..you are ALL IN.  Every single dollar counts.

    I wish I knew that my first walk.  I thought I was a peon.  The money I could bring in meaningless.  People, as walk coordinator, I have literally organized fundraisers that only made $50.  When I think of the amount of time and effort it took to set it up and to try and get people to go, and in my mind, we are still $50 closer to our goal, I ASSURE you, any and ALL efforts you make to get donations or to fund raise are appreciated.

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    This year, Denver is  currently ranked 5th in terms of number of participants out of 90 walks…but barely making the top 20 in money earned.  I’m pissed about that.  We have so many teams, why isn’t the money matching that?  Can you believe this keeps me up at night?  I literally make NO money doing this.  That’s how much I believe in CASANA.  Can you believe I’m not the only walk coordinator who feels this way?   I know the other walk coordinators via a facebook group.  All day long people post things they are doing to help CASANA, or what places they are calling and emailing trying to get donations to make the walk the best it can be.   Mind you, these are ALL volunteers working for FREE because that is how much they appreciate and believe in CASANA.  We are all people willing to work for free, lose sleep, and possibly go on anxiety medication (lol) because we want every cent possible to go back to CASANA.

    Last year I posted why people walk.  This year I wanted you to know why I am a walk coordinator.  It’s not for money or recognition, let me assure you.  It’s because I believe in the organization I am representing.  It’s because I love what they stand for, and I love what our children will take away from the walk that day.

    It’s because EVERY CHILD DESERVES A VOICE.  I would appreciate any donations to the walk.  85% of every dollar goes directly back to helping kids when you support the non-profit CASANA.  They are amazing and a worthy cause.  I can’t say enough. If you are so moved, the link is included below.

    http://casana.apraxia-kids.org/site/TR?fr_id=1932&pg=entry

     

     

  • My head gets messed up sometimes

    My head gets messed up sometimes

    This is what Ashlynn has said to me twice today.  It’s rather timely since I just wrote about a post about letting our kids know they have apraxia so they have a name for the problems they experience.

    Ashlynn (I thought) has known she has apraxia, but I realized I said it a lot when we were still just trying to get her words out and her sounds right, but maybe I hadn’t said it lately.

    This morning she called me Grandma, stopped, and then hit her head and said “ugh.  WHY DO I DO THAT???  You’re not Grandma…you’re um………….”   I waited patiently.  “Mommy.  You’re mommy.  Ugh.  My head gets messed up sometimes,” and she hit her forehead.

    I quickly told her “Ashlynn, your head is not messed up.  You have apraxia, and that is what makes it hard to get the words out sometimes and also why you may say the wrong word.”  My husband quickly followed up with his own words of encouragement.

    Two hours later I was working on my computer, and she came over and started talking to me.  I was asking her what she wants for her birthday.  She told me her standard: cards, papers, pens.  She’s always fighting over Jace’s magna tiles, so I asked if she wanted magna tiles.  She immediately said yes!  Then she said, “I couldn’t think of that word: magna tiles.  I said Legos but that’s not right.  Ugh.  My head gets so messed up sometimes.”  I started to say something, and she interrupted and said, “That’s because I have apraxia?”  I quickly agreed and told her that’s why she goes to speech therapy.  (Except she hasn’t been to private speech lately because of some personal family extenuating circumstances).  So, literally two minutes later I look up and see this:

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    It’s not the best picture, but she has a box of decodable books we keep in the living room open and she is trying to read them.  She noticed me looking at her and she asked, “When am I going back to speech therapy mommy?”

    Sigh

    Apraxia sucks.  Ashlynn is amazing and her head is anything but “messed up.”  Why does she have to work so damn hard.  Why does she have to know she has to work so damn hard.   Am I doing enough?  Am I saying the right things?  I swear being a parent is half doing what you think is right, and half second guessing what you said and did.  14358743_10208416578424614_2540639598855195286_n

    It’s such an invisible disability at this point.  No one would look at her and think apraxia.  No one would look at her and think her “head’s messed up.”  Ugh.  That kills me.  Look at her.  She’s looking out our window here taking it all in.  She is seeing and looking at WAY more than she says.  Maybe one day I will know everything in her head.  Maybe.

    Sometimes, I feel like I’ve been jipped. Other parents get to hear the thoughts behind this picture.  I try to read her eyes and her facial expressions.  Oh she talks.  That she does and she does it well now.  I still don’t know everything though, and she knows it now too…..and I don’t know whether or not to be sad or happy she is empowered to know why talking and getting the words out is hard for her.

    Sometimes I wonder if that’s unique to parenting a child with a communication disorder, or a more universal experience as a mother.  I think of the ABBA song I love so much:

    Do I really see what’s in her mind
    Each time I think I’m close to knowing,
    she keeps on growing,
    slipping through my fingers all the time.

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  • Lessons in emotional intelligence..courtesy of a 6 year old with apraxia

    Lessons in emotional intelligence..courtesy of a 6 year old with apraxia

    Ashlynn’s classroom has a color clip system for behavior.  Basically, every child starts the day on pink, which is a neutral color, and during the course of the day, students’ behavior earn them a “clip up” or “clip down” depending on their actions.  At the end of the day, they get a star to take home that is the color of where their clip was for that day.

    Ashlynn has never had below the neutral pink color.  On occasion, she has been coming home with greens and even some purple stars!  Yesterday, she had a green star and I asked her why she clipped up today.  She answered first that she didn’t know (easy, known, motor plan), but when I pressed more she said for sitting in her seat.

    When we were leaving, I was able to ask the teacher, who told us it was because Ashlynn finished a writing assignment and stayed focused even as many others around her were not.  I mean, maybe that’s what she meant by “sitting in her seat.”  Who knows.  Stupid apraxia.  I never feel like I get the entire story, and how frustrating for Ashlynn that she knows but can’t convey everything she knows.

    I made a joke to the teacher that I told Ashlynn if she clipped up she should know why so it can happen again!  I started thinking though, maybe that’s not right.  Mother Teresa was canonized this week and there were a lot of memes floating around social media.  This one caught my eye and reminded me of Ashlynn.

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    My God I pray she keeps this mentality.  She really does know who she is.  She could care less about clipping up.  I mean let’s be honest.  If you’ve read my blog, you know that girl works harder than anyone else and is always trying to learn to write, to talk, to read, to do jumping jacks….like literally her play is stuff she practices in her various therapies.  Basically, Ashlynn earns a clip up everyday.  Most people have to learn humility, ESPECIALLY egocentric kids.  As I write that, I don’t mean to imply there are *some* egocentric kids.  Kids in general ARE egocentric.  It’s their nature.

    Not Ashlynn though.  Nope.  Ashlynn was born with humility.  Seriously.  I can’t tell you how many times she gets told she’s pretty on a daily basis and she always accepts the compliment with a smile and grace.  I’ve never heard her once walk around bragging about anything, but conversely, she is not devastated by criticism either.  If you don’t believe me, read this incident at the park where one of our worst dreams comes true and she is asked why she “talks like a baby” when she was just learning to talk and use her words and was putting herself out there.  She handled it way better than me and I’m the adult.

    Anyway, when I first started this blog, one of my most liked posts was called lessons from a tricycle.  Really, this blog could be called Lessons from Ashlynn.  I always talk about emotional intelligence, and I really wish it was talked about or even acknowledged at IEP meetings because it’s a real thing and people with it make this world a better place.  Seriously.  I would posit that most people need lessons in emotional intelligence, even  adults….including me.

    If you follow my fb page, you know that I won this award, a media award from ASHA, which is the governing body over ALL speech pathologists and audiologists nationwide.  ASHA is basically our American Academy of Pediatrics.  I unabashedly felt the need to publish it on my fb page.  I would love to go to the national conference in November, but I probably can’t; but really, if I think about it, it’s just vanity, or lack of humility, that makes me want to be there so bad…..and that’s when I take a lesson from Ashlynn.

    She just does her thing whether people notice or not, and I seriously feel like the biggest A-hole for thinking I need to go to some conference to be recognized.  Oh Ashlynn.  Here we are.  You teach me lessons again and again and you are only six.  Humility is probably on my top five virtues I admire in people. Honesty and integrity being up there too, humility is admirable to me and Ashlynn has it naturally.  Keep it up my young chickadee.   I’m so proud of you.  I love you, I admire you, and I know you are destined for great things.

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  • To tell or not to tell……..your child they have apraxia of speech?

    To tell or not to tell……..your child they have apraxia of speech?

    I see a question that gets asked a lot.  In fact, I asked it myself.  It usually goes something along the lines of,

    “Did you tell your child they had apraxia?  If you did, how did you say it? What did you say?”

    I remember thinking when I first saw this question that I wouldn’t tell Ashlynn until way later….and then…maybe if she still seemed apraxic, I would tell her.  I didn’t want her to feel different.  I wanted her to know I believed in her and I wanted her to believe in herself.  I wanted her to know that she can do anything anyone else can do.

    Yep.  That was my stance…..

    Until,

    Sharon Gretz, the executive director of CASANA answered someone’s question.  She made so much sense, I couldn’t help but immediately question my own decision.  She told this parent that it’s important kids know from an early age what their problem is, so they have a name for the difficulties they are facing. Providing a name empowers the child because they realize their struggles are due to something that is real.  In this way, they have a name for the struggles they are experiencing, and don’t develop their own schemas about it.  These schemas anyway, are usually negative and may include: I’m stupid, I’m dumb, or, I’m different.

    Aren’t we as parents the first to tell anyone who questions our child’s abilities that they are smart??  Aren’t we the first people to defend their honor?  What do we use an excuse?  Well, we explain apraxia don’t we?  We defend our children’s honor by labeling them.  Right?

    So, why wouldn’t you offer that SAME defense to your child?  You’re the first one to say your child is smart. I’m the FIRST one to say my child is capable.  If I, if you, truly believe this; can you really think your child doesn’t know they are different?  Do you really think that, or are you just hoping they don’t know?

    I have a feeling it’s the latter.  I have this feeling, because I have hoped the same thing.

    Truth is, Ashlynn has always known.  I remember when she had JUST turned three and was put in preschool as a nonverbal child, the teachers reported she would just laugh when they asked her to do something.  I could see it in their eyes:

    Low cognition
    Poor comprehension

    However, I knew….I KNEW as her mother, that Ashlynn laughed as a coping mechanism because she couldn’t do what was being asked.  It didn’t matter if it was speech or otherwise.  Ashlynn has GLOBAL APRAXIA, meaning overall motor planning difficulties. It didn’t matter what they asked her to do, she couldn’t do it…so…she laughed.

    Every heard of emotional intelligence?  My daughter has it in spades.  If you haven’t, it’s because we live in a society who only values academic intelligence, completely ignoring the fact that a genius who can’t relate to people or get along with people can’t be successful in life.

    No.

    I’m ever so thankful I read that post and the response from Sharon.  Before I was even sure my daughter knew what I was saying, I told her she had apraxia.  Whenever she even remotely paused and looked upset, I would tell her “oh dangit.  That darn apraxia!”

    If you have read my blog for awhile, I talk about apraxia being the new stuttering.  Back in the day, no one wanted to tell a child they stuttered.  Surely they didn’t notice, so you didn’t want to draw attention to it.  Years of research later, low and behold children who stuttered DID know they were different, and instead of understanding their disability, they developed shame.

    Shame is a bitch.  Shame develops when you feel as though you have done something wrong.  If we don’t talk to our kids about apraxia, we risk them feeling ashamed of it.  Apraxia is NOTHING to be ashamed of.

    That leads me to my final thought.

    The walks for apraxia taking place around the country.

    I recently learned so many people think the walk is about awareness.

    I mean, I guess.  I can see that.  Certainly a part of the walks is about awareness.  Publicity leading up to the walk and various news stories all bring awareness and awareness is very good.

    However, it may surprise you to know, especially from me, that the walk itself has very, very little to do with awareness in my eyes.

    The walk, in particular, the medal ceremony, has EVERYTHING to do with honoring our children.

    No shame.

    We HONOR them for their struggle.  We HONOR them for differences.  We HONOR them for their perseverance and hard work..

    We HONOR them.  We RECOGNIZE them.  Their family and friends HONOR them.  Their therapists HONOR them.  We all honor them, because despite the odds, they persist and achieve.  We recognize their achievement in spite of apraxia, and they can feel pride, not shame.

    Even if your child is considered “resolved,” I would urge you to rethink your stance on not telling them. People………..they KNOW.  They may not know what apraxia means, but they know they aren’t like other kids. They know they are different.

    On final thought.  A label should never be used an excuse and trust me, our sweet babes are smart enough to use a label to their advantage.  I’ve definitely heard a story or two about, “oh I can’t do that because I have _____.”

    On the contrary, it’s a teachable moment to say, “It makes it more difficult for you, but YOU are capable and I believe in you.”

    If you don’t believe me, ask my daughter some day!  We are obviously an atypical family because I specialize in apraxia so I see kids all day with apraxia and of course Ashlynn has it; however, my youngest son asked me why he DIDN’T have apraxia.  lol.

    No shame in this house.  Only knowledge…and knowledge is power.

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    Jumping her heart out at a fundraiser for the Apraxia Walk

     

  • The day I met Ronda Rousey, and she told my sister to “keep fighting” for her words!

    The day I met Ronda Rousey, and she told my sister to “keep fighting” for her words!

    Hi Katerina!

    I’m so excited to have you here today.  I saw in the Ronda Rousey #knockoutparaxia your mom posted a video of you attending a Women’s Leadership Conference in Chicago where you were able to ask Ronda a question about apraxia and meet her in person.  Can you explain to my readers why you wanted to go to this?

    Back in May, I was sitting at my school’s awards assembly when I got a text from my mom, telling me that I had been invited to the Astellas Women in Action conference in Chicago by a family friend who works for Astellas. My first reaction was “OMG, yeah!” I couldn’t tell my mom though, because I wasn’t even allowed to have my phone! (oops.) My mom was so anxious for an answer she came to my assembly and found me in the bleachers! It was a huge opportunity that a girl like me doesn’t get very often, so I said yes right away!

    Before the conference, the company launched an app that connected everyone attending. It was a smart idea, because there were people flying in all around the world for this conference. And in the app, you could compete in little “competitions” with everyone. There was an “Ask Robin” and “Ask Ronda” competition, as well as a selfie contest. The “Ask Ronda” contest was the only one I competed in, and I only entered one question. “My sister has been diagnosed with apraxia, a disability you once had. From your experience, what can I do to help her succeed?” And that was the beginning of this amazing experience.

    I think it’s so amazing that as a sibling you have so much concern for your younger sister you were prompted to go to this.  In the video you took, I heard you holding back tears.  We don’t often think about how apraxia can affect the siblings.  Can you tell us why you were so emotional?

    Well, I had a bit of a rocky start at the conference. My flight had been canceled, my mom and I drove to Chicago instead, and I was very tired. I had a whirlwind of emotions all weekend, and when Robin Roberts announced her name, I immediately started crying! And that was even before the interview! I had no idea that the one question I submitted would be chosen out of hundreds, and the way Ronda answered it answered a lot of personal questions I had. I knew how to help my sister when she was younger, but I have no idea how to help her now and in the future. My little sister is in first grade, and other kids are already asking one of my brothers (grade 4) why his little sister is stupid. And it hurts because I had no idea how to help her succeed. But thanks to Ronda, I know how, and just the thought of that makes me very happy and emotional.

    You were able to go back and meet Ronda! What was that experience like?  What was Ronda like?

    The whole experience was just amazing. When I walked into the room for the photo opportunities, I immediately started crying again. I made a security guard tear up a little bit too! Actually, I don’t think I stopped crying until that afternoon because the whole experience was so surreal. Ronda was so sweet the entire time and kept hugging me, and telling me I was an amazing older sister for asking my question.

    What did you learn (if anything) from this experience?

    I had no idea my little 2 minute video would affect so many people, and it puts into perspective how many families have loved ones with apraxia, and are going through the same things my family is. I’m so glad I could help others with my own experiences!

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    Autographed picture by Ronda Rousey encouraging Katerina’s sister to “keep fighting!.”

    You experience resonated with so many parents and families!  For me, I can so appreciate your description of Ronda.  She was the same with me and my daughter; sweet, kind, and genuine!  Thank you for telling your story.  You are obviously an AMAZING young woman, and your sister is so lucky to have you in her corner!

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  • Overgeneralization: a caution for clients with CAS

    Overgeneralization: a caution for clients with CAS

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    Before I knew my daughter Ashlynn had CAS, and before I spent countless hours researching, taking trainings, and becoming an expert in CAS; I was an elementary school SLP.  Like any new SLP, I was relatively inexperienced with CAS.  One year, I transferred schools and a 3rd grade boy with a dx of CAS popped up on my caseload.  Most people, including his mother, still found him very hard to understand.  In her defense, it didn’t help that her first language was Spanish, and this boy only spoke English (apraxic English, you can say).11wwpm

    Anyway, I could understand him most of the time, but his errors were bizarre.  He had an /l/ substitution EVERYWHERE, but mostly for sounds he had not yet acquired including /r/ and /th/.  Some examples: (blown/brown, muller/mother, bruller/brother).

    This was my first experience with “over-generalization” and it’s potential to have a negative  lasting impact on kids with CAS.

    It was not my first experience though with over-generalization.  In kids with phonological disorder, this will happen occasionally.  For example, we might be focused on a pattern, let’s say, /s/ blends.  A child with a phono disorder will usually omit the /s/ in an /s/ consonant cluster.  One of my mentors used this example:

    “I see a star in the sky” would be “I tee a tar in the tye.”  There are a few phono processes going on here, but suffice it to say, the child is still omitting the /s/ which would be considered a consonant cluster reduction.

    When we start targeting /s/ blends, the child will usually (temporarily), start adding an /s/ before every sound. Soon after they learn the pattern without any real long term consequence to existing speech patterns.  This is generally regarded a positive sign with phonological disorder, because the child is showing they are making system-wide changes that are generalizing.

    This is NOT necessarily true if a child has a dx of CAS.  Over-generalization can cause havoc on an already faulty motoric system.  There is a limited research I found regarding this phenomenon; however, there is some in the adult literature regarding acquired apraxia of speech (AOS).   Wambaugh et.al. (1999) found that in adults with apraxia,  sound production training did yield system-wide positive changes in the acquisition of a sound; however, overall maintenance effects exhibited declines in sound production accuracy (intelligibility).  The authors concluded this decline was directly attributed to over-generalization of the taught target sound.  They recommended using multiple sound targets to increase variability and stabilization during training.

    I have searched for more research articles on the subject but have come up empty.  This is NOT to say; however, that it is not a common occurrence.  Research in the field of communication disorders isn’t exactly robust like it is in the medical field.  Even the research we have on apraxia, though more than it was, rarely meets the criteria for the highest level of evidence to be proven effective.  Many times we have to go on our clinical experience, and in treating kids with CAS, I have now seen plenty of cases of over-generalization directly caused by the current therapeutic approach.  Of course, questions like these usually lead to one pursuing a doctorate and doing a research study….but……that is for another time.  lol

    I do feel though I need to write on the topic.  So here it is.

    Therapy for apraxia needs to include many target sounds, sound placements, and syllable shapes.  This is very different from many (most) treatment approaches for other speech sound disorders.  Let me give you some examples.

    In articulation approaches, therapy focuses on one sound.  They work to get accuracy and generalization for that particular sound in many different places of words: initial, medial, and final.  Therapy then progresses from word, to phrase, to sentence, to conversation.

    In phonologic approaches, therapy focuses on patterns of errors.  For example, in a popular Cycles approach, kids consistently may delete final consonants (ca/cat, do/dog) or leave off consonant clusters (tar/star, no/snow), to name a few.  Therapy would then focus on including final consonants, or consonant clusters.

    These are common approaches to most speech sound disorders.  These are what most SLP’s will have experience with.  They will have seen these in their internships.  It’s no surprise then when we fall back on these therapies.

    However, this WILL not do for apraxia.  Let me give you many personal examples I have now seen in my experience.

    For my first example, let’s go back to my 3rd grade boy with crazy /l/ substitutions.  Recall he had a history of apraxia and when I met him he was substituting /l/ for sounds he had not yet acquired (r, th).  If you are an SLP, you will know this is a pretty unusual error.  It was also an error that, at the time, before I knew motor learning principles, I had an INCREDIBLE difficult time extinguishing.  I can’t help but wonder (actually I’m really sure now), that the child had fairly good apraxia therapy, and probably was working on /l/.  At younger ages, we typically don’t work on later developing sounds such as /th/ and /r/.  However, he overgeneralized ALL of his errors to mean he needed to produce an /l/ and there I met him in 3rd grade, and what I saw was a child now saying /l/ for every sound he still had in error.

    My second example is a child who has a TON of language, but who is severely apraxic.  Unlike my daughter, he can tell stories for hours, but the sounds are completely muddled, jumbled, and in no sensible order.  At the word level he would remember to include final consonants, but at the conversational level all of his final consonants were omitted.  I am working with his school SLP who is amazing, and she noticed this pattern (phonological disorders and apraxia CAN co-exist), and decided to remediate it.  She remediated it SO well, he was adding final consonant sounds to syllables and/or words he had previously mastered that DID NOT have a final consonant.  One phone call revealed the error, and we both worked feverishly to rid him of this overgeneralization pattern.  We were able to do it, but only after using principles of motor learning.  Had she not been so open, there is not doubt in my mind he would still be adding these final consonants to every word. Much like my first example, established motor plans in a child with apraxia is VERY hard to extinguish.

    My third example includes a child I started seeing in the very early stages.  Though she was able to say many early developing sounds in isolation, she had extreme difficulty sequencing them correctly at the word level.  I was seeing her along with another private SLP and school SLP.   Early on, she made incredible progress.  The other SLP’s  were using Kaufman cards, and the first set of Kaufman cards account for all the variables I mentioned above: varying sounds, sound positions, and syllable shapes.  When you are dealing with a motor planning disorder, a “sequencing” disorder, these three things are very important. In fact, Nancy Kaufman herself describes her method on her website as:

    This is performed through using cues, fading cues, using powerful and strategic reinforcement (motor learning principles), errorless teaching (cueing before failure), gaining many responses within a session, and mixing in varying tasks to avoid over generalization.

    Only problem with example number 3 is that she progressed beyond the level 1 cards and so the SLP defaulted on what she knows.  This client wasn’t producing any fricatives (s, f, sh) so she started with the fricative (/f/) and starting hitting it hard.  The result?  My shared client is now using this taught phoneme for all other current fricatives and errored phonemes, and getting her to eliminate this now very strong motor plan is taking longer than expected.  What SHOULD have happened is that we target all fricatives now (a variety of sounds) in all word positions and stimulable syllable shapes, STILL using the principles of motor learning theory.

    Overgeneralization.  It’s a PROBLEM in CAS.  If you are an SLP and you start seeing this, you need to look at what you need to change.  It’s not a positive indicator like it is for phonological disorder.  You are literally carving incorrect motor plans. Remember, we cannot focus on a single sound.   We cannot focus on a single pattern.  We cannot focus on a single word position.  We cannot focus on a single syllable shape.  We have to choose targets that are variating ALL of the above that are including sounds within a child’s repertoire.  If we don’t, we are going to have a kid with apraxia overgeneralize what we have taught them, and it’s going to cause havoc on their motor system, and potentially make them even less intelligible.

    In addition, you will always hear me talk about wasting TIME.  Time is so, SO precious to a parent with apraxia, more specifically, getting a child to improve as quickly as possible.

    This is ALSO why it’s SO important that even after a child has resolved, a dx of CAS always be included in the case history, because principles of motor learning theory are still the most effective in driving treatment.  This is true even when you have moved on to grammar or additional language targets.  Apraxia is a different monster.  Educate yourself.  Learn more. Vist apraxia-kids.org.

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    Resources:
    Wambaugh, J. L., Martinez, A. L., McNeil, M. R., & Rogers, M. A. (1999). Sound production treatment for apraxia of speech: Overgeneralization and maintenance effects. Aphasiology, 13(9-11), 821-837.